Patterns of Cognition, Communication, and Adaptive Behavior in Children With Developmental Disabilities.
When a toddler has almost no words, caregiver and clinician scores can split—so always double-check before writing the plan.
01Research in Context
What this study did
The team watched 129 toddlers who had big delays and spoke fewer than 10 words.
Each child got two full check-ups: one by their main caregiver and one by a trained clinician.
The check-ups looked at thinking skills, talking skills, and daily living skills.
What they found
Most of the time, moms and clinicians agreed on how the child scored.
But for the kids with the least language, the scores started to drift apart.
In that tiny subgroup, caregiver ratings were higher than clinician ratings.
How this fits with other research
Tyler et al. (2021) saw the same pattern in older kids. They used parent and teacher forms instead of moms and clinicians, but the message is the same: two raters catch more than one.
Balboni et al. (2020) looked at adults and kids with severe ID. They found more adaptive skills can sit next to more problem behavior. This sounds opposite, but both studies warn us: never trust a single score.
Liyew et al. (2025) used only caregiver ATEC ratings to map sensory-cognitive patterns. Phebe’s work shows that for the most delayed toddlers, adding a clinician check could change the map.
Why it matters
Before you pick goals for a minimally verbal toddler, run both a caregiver interview and a direct test. If the scores clash, probe deeper. A wrong profile leads to wrong targets and wasted hours.
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02At a glance
03Original abstract
Young children with developmental disabilities (DD) exhibit a range of strengths and weaknesses in cognitive, language, and adaptive skills. Identifying individual patterns of abilities across these domains is important for informing interventions. This study examines how 129 toddlers with significant developmental delays and less than 10 spoken words perform across different developmental domains and assessment methods (i.e., caregiver report and clinician-administered tests). Children exhibited statistically and clinically meaningful strengths and weaknesses across developmental domains, which may have important implications for differential interventions. Caregiver-reported and clinician-rated measures of cognition, language and adaptive functioning were highly related. However, the relation between caregiver report and clinician ratings was weaker for a subgroup of children with relatively more limited expressive language compared to other children in the sample.
American journal on intellectual and developmental disabilities, 2021 · doi:10.1352/1944-7558-126.4.324