Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder.
Parents rate toddler autism exams as okay across the board—only minority parents feel slightly less served, and later work shows fuller exams close that gap.
01Research in Context
What this study did
Jashar et al. (2019) asked 120 parents how they felt after a full autism check-up for their toddler. The team looked at child age, sex, race, and family income to see if any of those changed parent views.
Parents filled out a 12-item survey right after the clinic visit. Items asked if the process felt respectful, clear, and helpful.
What they found
Most parents gave middle-of-the-road scores. Kids’ traits or money level did not move the needle.
Only one item differed: minority parents scored slightly lower on “my needs were met.” The gap was small but real.
How this fits with other research
Thompson Brown et al. (2026) extends this picture. They found Black kids often miss school autism eligibility because the exam was short or skipped key parts. The lower score Tenzin saw is tied to exam depth, not race itself.
Klein et al. (2024) survey of 400 Black and multiracial families adds why: providers sometimes dismiss parent worries and cultural gaps add friction. These barriers likely feed the “needs not met” dip Tenzin caught.
McKenzie et al. (2015) shows the roots—protective cultural caring and service distrust can delay diagnosis. Together the four studies trace a line from culture, to thinner exams, to lower satisfaction.
Why it matters
You can’t fix satisfaction with nicer waiting-room toys. Check your exam parts: ADOS, language sample, parent interview, feedback call. If any step is missing, say so and schedule it. Minority families will feel heard, and you will cut later eligibility fights.
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02At a glance
03Original abstract
Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback.
Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-018-3851-z