Mental and behavioral disorders among people with congenital deafblindness.
Most adults born deaf and blind carry extra mental-health labels, but many behaviors stem from sensory loss, not true psychiatric disorder.
01Research in Context
What this study did
Dammeyer (2011) asked 95 adults who were born both deaf and blind about mental-health diagnoses.
Staff and medical records helped list every behavioral or psychiatric label each person carried.
The survey took place in Norway and counted any diagnosis from mild anxiety to severe behavior disorder.
What they found
Three out of four adults had at least one mental or behavioral diagnosis.
The high rate shows how hard it is to tell sensory-driven behavior from true psychiatric symptoms.
Authors warned that deafblindness itself can look like autism, ADHD, or psychosis.
How this fits with other research
Dammeyer (2014) later saw the same overlap in children: kids born deafblind scored high on autism checklists even when they did not have autism.
Kiani et al. (2019) found that adults with ID who are only blind still meet autism criteria three times more often, so vision loss alone inflates scores.
Moss et al. (2009) flipped the lens and showed that one in five adults with ID have hidden deaf-blindness, meaning sensory loss is missed as often as mental illness.
Together these papers say: sensory impairment raises both autism scores and psychiatric labels, so always rule out sensory causes first.
Why it matters
When you see self-hitting, rocking, or limited eye contact in a deafblind client, pause before adding an autism or mood label. Ask for audiology and vision reports, use tactile cues, and bring in an interdisciplinary team. Clear sensory baselines cut misdiagnosis and keep treatment plans focused on real needs, not assumed disorders.
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02At a glance
03Original abstract
The population of people with congenital deafblindness faces challenges concerning communication and mobility. Due to the significance of the sensory loss it is difficult to diagnose mental and behavioral disorders. This article investigates the prevalence of mental and behavioral disorders among 95 congenitally deafblind adults. Seventy-four percent were found to have a mental and/or behavioral diagnose. Mental retardation was found among 34%, psychosis among 13%. Mental and behavioral disorders, especially with symptoms of psychosis and mental retardation, are common among people with congenital deafblindness. Clinical experience is needed, as well as cross-disciplinary cooperation and specialized diagnostic methods together with a observation and intervention period in order to be able to assess and differentiate mental and behavioral symptoms from sensory deprivation in people with congenital deafblindness.
Research in developmental disabilities, 2011 · doi:10.1016/j.ridd.2010.12.019