Assessment & Research

Mental and behavioral disorders among people with congenital deafblindness.

Dammeyer (2011) · Research in developmental disabilities 2011
★ The Verdict

Most adults born deaf and blind carry extra mental-health labels, but many behaviors stem from sensory loss, not true psychiatric disorder.

✓ Read this if BCBAs who assess or write plans for adults with dual sensory loss and ID.
✗ Skip if Clinicians serving only verbal clients with typical hearing and vision.

01Research in Context

01

What this study did

Dammeyer (2011) asked 95 adults who were born both deaf and blind about mental-health diagnoses.

Staff and medical records helped list every behavioral or psychiatric label each person carried.

The survey took place in Norway and counted any diagnosis from mild anxiety to severe behavior disorder.

02

What they found

Three out of four adults had at least one mental or behavioral diagnosis.

The high rate shows how hard it is to tell sensory-driven behavior from true psychiatric symptoms.

Authors warned that deafblindness itself can look like autism, ADHD, or psychosis.

03

How this fits with other research

Dammeyer (2014) later saw the same overlap in children: kids born deafblind scored high on autism checklists even when they did not have autism.

Kiani et al. (2019) found that adults with ID who are only blind still meet autism criteria three times more often, so vision loss alone inflates scores.

Moss et al. (2009) flipped the lens and showed that one in five adults with ID have hidden deaf-blindness, meaning sensory loss is missed as often as mental illness.

Together these papers say: sensory impairment raises both autism scores and psychiatric labels, so always rule out sensory causes first.

04

Why it matters

When you see self-hitting, rocking, or limited eye contact in a deafblind client, pause before adding an autism or mood label. Ask for audiology and vision reports, use tactile cues, and bring in an interdisciplinary team. Clear sensory baselines cut misdiagnosis and keep treatment plans focused on real needs, not assumed disorders.

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02At a glance

Intervention
not applicable
Design
survey
Sample size
95
Population
intellectual disability, mixed clinical
Finding
not reported

03Original abstract

The population of people with congenital deafblindness faces challenges concerning communication and mobility. Due to the significance of the sensory loss it is difficult to diagnose mental and behavioral disorders. This article investigates the prevalence of mental and behavioral disorders among 95 congenitally deafblind adults. Seventy-four percent were found to have a mental and/or behavioral diagnose. Mental retardation was found among 34%, psychosis among 13%. Mental and behavioral disorders, especially with symptoms of psychosis and mental retardation, are common among people with congenital deafblindness. Clinical experience is needed, as well as cross-disciplinary cooperation and specialized diagnostic methods together with a observation and intervention period in order to be able to assess and differentiate mental and behavioral symptoms from sensory deprivation in people with congenital deafblindness.

Research in developmental disabilities, 2011 · doi:10.1016/j.ridd.2010.12.019