Assessment & Research

Identifying facilitators and barriers to physical activity for adults with Down syndrome.

Mahy et al. (2010) · Journal of intellectual disability research : JIDR 2010
★ The Verdict

Adults with Down syndrome move more when caregivers make activity fun and part of the daily routine.

✓ Read this if BCBAs working with adults with Down syndrome in day programs or group homes.
✗ Skip if Clinicians serving only children or clients without Down syndrome.

01Research in Context

01

What this study did

Researchers talked to the adults with Down syndrome and their caregivers.

They asked what helps and what stops these adults from moving more.

The team recorded the answers and looked for common themes.

02

What they found

Three things made activity easier: steady caregiver support, fun activities, and daily routines.

Three things blocked activity: no support, no interest, and health problems.

In short, adults with Down syndrome move more when someone cheers them on and the task feels like play.

03

How this fits with other research

Rasing et al. (1992) showed that most adults with Down syndrome are already overweight.

The new study explains why: support and fun are often missing.

McQuaid et al. (2024) found that extra weight in these adults does not raise diabetes risk like it does in others.

This means the real goal is not weight loss but steady movement for heart health and joy.

Carter et al. (2013) saw lower activity in boys with DCD.

That looks like a clash, but the kids had motor problems, not Down syndrome, so the barrier was skill, not support.

04

Why it matters

You can raise activity right away by adding two steps: pair each client with a steady helper and turn exercise into a game.

Start with short, fun routines at the same time each day.

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→ Action — try this Monday

Pick one fun 5-minute movement game and run it at the same time every day this week with the same staff member leading it.

02At a glance

Intervention
not applicable
Design
qualitative
Sample size
18
Population
down syndrome
Finding
not reported

03Original abstract

BACKGROUND: Adults with Down syndrome are typically sedentary, and many do not participate in the recommended levels of physical activity per week. The aim of this study was to identify the facilitators and barriers to physical activity for this group. METHOD: Semi-structured interviews were conducted to elicit the views of adults with Down syndrome and their support people about what factors facilitate physical activity and what factors are barriers to activity. A sample of 18 participants (3 men, 15 women) was recruited through two agencies providing services for adults with disabilities; six participants were adults with Down syndrome and 12 participants were support people (four were parents of adults with Down syndrome and eight participants were employed by day programmes attended by the adults with Down syndrome). The interviews were recorded, transcribed verbatim and independently coded by two researchers. RESULTS: Three themes around facilitators to physical activity were identified: (1) support from others; (2) that the physical activity was fun or had an interesting purpose; and (3) routine and familiarity. Three themes around barriers were also identified: (1) lack of support; (2) not wanting to engage in physical activity; and (3) medical and physiological factors. CONCLUSIONS: The results suggest that support people play a key role, both as facilitators and barriers, in the participation by adults with Down syndrome in physical activity. Many of the barriers and facilitators of activity for adults with Down syndrome indentified are similar to those reported for adults without impairment. Our findings are also consistent with established theories in the field of health behaviour change.

Journal of intellectual disability research : JIDR, 2010 · doi:10.1111/j.1365-2788.2010.01308.x