Assessment & Research

Fatal intestinal obstruction in the mentally handicapped.

Jancar et al. (1994) · Journal of intellectual disability research : JIDR 1994
★ The Verdict

A blocked bowel can kill people with ID before anyone sees pain or vomiting—suspect it early when constipation lasts two days.

✓ Read this if BCBAs and RBTs serving teens or adults with severe intellectual disability in residential or day programs.
✗ Skip if Clinicians working only with typically developing clients or those with mild ID and no constipation history.

01Research in Context

01

What this study did

Doctors looked back at 32 deaths of people with intellectual disability.

They wanted to know how often the bowel got blocked and how fast it turned deadly.

The review showed these blockages were both more common and quicker to kill than expected.

02

What they found

Many clients felt almost no pain and never threw up.

Because the classic warning signs were missing, the blockage was found too late to save them.

The study warns that constipation can slide into a fatal obstruction with little noise.

03

How this fits with other research

Weiss et al. (2001) later counted that about 70% of adults in state homes are constipated.

That big number makes the 1994 death report even scarier: the starting condition is common.

Giallo et al. (2006) saw the same "silent" pattern with choking—another hidden killer in the same group.

Together the papers tell us to watch, ask, and act even when the client looks calm.

04

Why it matters

You already track behavior, food, and bowel charts. Add one quick rule: if a client with ID has not moved their bowels in two days, treat it like a red-flag behavior, not a small care note. Push fluids, offer fruit, walk them, and call the nurse early. Your prompt action can stop a quiet bowel blockage from turning into a 911 call.

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→ Action — try this Monday

Start a two-day bowel log for every client and teach staff to call the nurse if no stool is recorded.

02At a glance

Intervention
not applicable
Design
other
Sample size
32
Population
intellectual disability
Finding
not reported

03Original abstract

In a retrospective study of hospital records over a 50-year period, data on 32 patients who died as a result of intestinal obstruction are presented and compared with comparison groups and national mortality statistics. There was a higher incidence and lower mean age at death of fatal intestinal obstruction compared with the total national population. The mean age at death significantly increased over the study period. Intestinal volvulus was a common cause of obstruction particularly in those with cerebral palsy. There was a high prevalence of chronic constipation and megacolon. Foreign-body obstruction was de facto related to pica, but overall, there was a low prevalence of pica. Overall, mean IQ was low, but only significantly so in the male subjects. The length of acute illness was short; in 22 patients it was less than 24 h. Vomiting and abdominal distension were often absent and abdominal signs were recorded only in five patients. Pain or distress was recorded in only nine patients. Only eight patients were correctly diagnosed before death and only two had surgery. The results suggest that fatal intestinal obstruction is more common in mentally handicapped people and chronic constipation and megacolon are risk factors. Intestinal obstruction in mentally handicapped people can present late and with deceptively minimal signs and symptoms.

Journal of intellectual disability research : JIDR, 1994 · doi:10.1111/j.1365-2788.1994.tb00420.x