Assessment & Research

Ethnicity reporting practices for empirical research in three autism-related journals.

Pierce et al. (2014) · Journal of autism and developmental disorders 2014
★ The Verdict

Ethnicity is missing in most autism studies—start adding a clear ethnicity variable to every participant table you publish.

✓ Read this if BCBAs who write, review, or consume autism research.
✗ Skip if Clinicians who only read summaries and never open the methods section.

01Research in Context

01

What this study did

Sawyer et al. (2014) read every research paper in three top autism journals for one year. They counted how many studies told readers the ethnicity of the participants.

02

What they found

Most autism studies left ethnicity out of the participant table. The authors warned that this gap hides who is really being studied.

03

How this fits with other research

Lovelace et al. (2022) extends the same worry. They looked back 77 years and found only three papers that focused on Black autistic women and girls. Together the two reviews show the field first omits ethnicity, then also omits whole minority groups.

Anonymous (2024) and Fradet et al. (2025) add a second layer: autistic adults want research led by autistic people and rooted in real-life context. So the problem is not just missing labels; it is missing voices.

Milton (2014) closes the loop. That paper argues that without autistic co-researchers, even perfect ethnicity tables still treat people as data points, not partners.

04

Why it matters

If you publish or review autism studies, add one column: ethnicity. One extra line in the participant table lets future meta-analyses spot disparities and design fairer interventions. It takes five minutes and costs nothing.

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Open your last case report or poster and add an ethnicity row to the participant table.

02At a glance

Intervention
not applicable
Design
scoping review
Population
not specified
Finding
not reported

03Original abstract

This review examines ethnicity reporting in three autism-related journals (Autism, Focus on Autism and Other Developmental Disabilities, and Journal of Autism and Developmental Disorders) over a 6-year period. A comprehensive multistep search of articles is used to identify ethnicity as a demographic variable in these three journals. Articles that identified research participants' ethnicity were further analyzed to determine the impact of ethnicity as a demographic variable on findings of each study. The results indicate that ethnicity has not been adequately reported in these three autism related journals even though previous recommendations have been made to improve inadequacies of descriptive information of research participants in autism research (Kistner and Robbins in J Autism Dev Disord 16:77-82, 1986). Implications for the field of autism spectrum disorders are discussed in addition to further recommendations for future research.

Journal of autism and developmental disorders, 2014 · doi:10.1007/s10803-014-2041-x