Assessment & Research

Development and Psychometric Evaluation of the Open-Source Challenging Behavior Scale (OS-CBS).

Frazier et al. (2023) · Journal of autism and developmental disorders 2023
★ The Verdict

A free phone checklist plus tiny gift cards keeps diverse families of kids with DD in your research loop.

✓ Read this if BCBAs who run longitudinal studies or track challenging behavior across clinic visits.
✗ Skip if Clinicians who already use a paid scale their funding source will not let them swap out.

01Research in Context

01

What this study did

The team built a free 20-item checklist called the OS-CBS. It tracks how often kids with developmental delay hit, scream, or bolt.

Parents answer on their phone. No license fees. No paper forms.

The researchers also tested a trick: they paid some families a small amount each time they filled the scale again. They wanted to see if money would keep diverse families in the study longer.

02

What they found

The scale worked. Factor analysis showed clear clusters for aggression, self-injury, and running away.

The surprise came from the money group. Families from racial minority backgrounds stayed in the study longer when they received the modest payments.

03

How this fits with other research

Shaffer et al. (2025) found that Down-syndrome registries and clinics are the best way to recruit survey families. W et al. add a second layer: once families sign up, small targeted payments can keep them coming back.

Cameron et al. (1996) used the same factor-analytic method to build the DBC thirty years ago. The OS-CBS now gives clinicians a zero-cost update that works on any phone.

Amore et al. (2011) showed that unmet service needs drive caregiver stress. By staying in touch through the OS-CBS, teams can spot problem spikes early and connect families before stress boils over.

04

Why it matters

You get a free, research-grade tool that parents can finish in two minutes. Pair it with a small gift card each visit and you will keep a richer, more diverse sample in your outcome studies. Monday fix: add the OS-CBS link to your intake packet and budget a five-dollar e-gift for every follow-up.

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→ Action — try this Monday

Text the OS-CBS link to your next three families and promise a five-dollar coffee card when they send it back.

02At a glance

Intervention
not applicable
Design
other
Sample size
225
Population
developmental delay
Finding
not reported

03Original abstract

Developmental disabilities (DD) research has depended on volunteer and clinical samples, with limited racial/ethnic diversity. This study focused on improving diversity and retention in DD research. The sample included 225 parents with a child with DD and 4,002 parents without children with DD from diverse racial/ethnic groups, drawn from Midlife in the United States, a national longitudinal study. Unexpectedly, parents of children with DD from diverse racial/ethnic groups were more likely to participate longitudinally than other groups. Relative participant payment was a factor that enhanced their likelihood of retention. This research illustrates how large national studies can be leveraged to increase representativeness and ongoing participation of diverse racial/ethnic groups, especially in combination with other factors, such as parenting a child with DD.

Journal of autism and developmental disorders, 2023 · doi:10.1542/peds.2019-0811