Assessment & Research

Comprehensive Assessment of Individuals With Significant Levels of Intellectual Disability: Challenges, Strategies, and Future Directions.

DiStefano et al. (2020) · American journal on intellectual and developmental disabilities 2020
★ The Verdict

Standard tests give false zeros for severe ID—trim length, switch modality, and rule out sensory loss first.

✓ Read this if BCBAs who assess teens or adults with profound ID in school, day, or residential programs.
✗ Skip if Clinicians who only serve clients with mild ID or no ID.

01Research in Context

01

What this study did

DiStefano et al. (2020) looked at every hurdle when we test people with severe or profound intellectual disability.

They read dozens of past papers and spoke with clinics.

The team asked: why do scores crash to the bottom and what can we do about it?

02

What they found

Most IQ and language tests floor-out. That means the person gets a zero even if they know the answer.

Motor, vision, or hearing issues hide what clients really know.

The fix: shorten tasks, use pictures, give extra time, and watch for small responses like eye gaze or a finger lift.

03

How this fits with other research

Meuris et al. (2014) give a ready-made tool: a five-minute story task that works for adults who speak or use key-word sign. It shows the same idea in action—swap the test so the client can show skill.

Bellon-Harn et al. (2020) push further. They say future trials should drop IQ scores and use brain waves or daily-life ability scales instead. Charlotte’s paper sets the stage; L et al. show the next step.

Holburn (2001) warned us twenty years ago: always screen vision and hearing first. Charlotte repeats that warning, proving the rule still holds.

04

Why it matters

If you test a client and they score zero, you may cut their services. Use the paper’s checklist: check senses, pick short items, allow any response mode, and stop at first sign of fatigue. You will get truer scores and better goals on Monday.

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→ Action — try this Monday

Run a five-minute story or picture choice probe instead of a full IQ sub-test and record any eye shift, reach, or vocal sound as a response.

02At a glance

Intervention
not applicable
Design
narrative review
Population
intellectual disability
Finding
not reported

03Original abstract

The variety and extent of impairments in individuals with severe-profound levels of intellectual disability (ID) impact their ability to complete valid behavioral assessments. Although standardized assessment is crucial for objectively evaluating patients, many individuals with severe-profound levels of ID perform at the floor of most assessments designed for their chronological age. Additionally, the presence of language and motor impairments may influence the individual's ability to perform a task, even when that task is meant to measure an unrelated construct leading to an underestimation of their true ability. This article provides an overview of the assessment protocols used by multiple groups working with individuals with severe-profound levels of ID, discusses considerations for obtaining high-quality assessment results, and suggests guidelines for standardizing these protocols across the field.

American journal on intellectual and developmental disabilities, 2020 · doi:10.1352/1944-7558-125.6.434