Assessment & Research

Childhood disintegrative disorder: issues for DSM-IV.

Volkmar (1992) · Journal of autism and developmental disorders 1992
★ The Verdict

Childhood disintegrative disorder deserves its own DSM box—use the 1992 draft to spot the rare child who loses skills after two years of normal growth.

✓ Read this if BCBAs who assess preschoolers with sudden skill loss.
✗ Skip if Clinicians who only serve older or stable ASD clients.

01Research in Context

01

What this study did

Lindsley (1992) wrote a position paper to the DSM-IV team.

He asked them to list childhood disintegrative disorder (CDD) as its own diagnosis.

He gave draft check-boxes to tell CDD from autism.

02

What they found

The paper did not test kids.

It argued that CDD is real and different.

The draft listed late skill loss after at least two years of normal growth.

03

How this fits with other research

Ferreri et al. (2011) later used those draft rules on eight real cases.

They showed kids meeting the 1992 criteria lose skills at about age three.

Edgin et al. (2017) moved on to DSM-5 and found most old Asperger cases no longer meet autism cut-offs.

That shift makes the 1992 CDD plea feel small; the field now worries more about losing higher-functioning kids than about carving out an extra severe type.

04

Why it matters

You will rarely see CDD; it lives in the severe tail of the autism spectrum.

Still, knowing the brief skill-loss window helps you spot the few who need intense, rapid support.

If a preschooler loses language, play, or toileting after age two, track each lost skill and flag the team for full medical work-up.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Add one line to your intake form: 'Did the child lose any skill after age two? If yes, list skill and age lost.'

02At a glance

Intervention
not applicable
Design
theoretical
Population
other
Finding
not reported

03Original abstract

Childhood disintegrative disorder, also known as Heller syndrome or as disintegrative psychosis, is a relatively uncommon condition which has variably been included in official diagnostic systems. Available evidence regarding the validity of this diagnostic concept, particularly with regard to autism, supports inclusion of the category in DSM-IV. Proposed criteria and narrative description for the disorder are presented.

Journal of autism and developmental disorders, 1992 · doi:10.1007/BF01046331