Assessment & Research

Cause-specific mortality of people with intellectual disability in a population-based, 35-year follow-up study.

Patja et al. (2001) · Journal of intellectual disability research : JIDR 2001
★ The Verdict

Heart and lung diseases kill adults with ID early, but quick screens and daily walks can bend the curve.

✓ Read this if BCBAs serving adults with ID in residential, vocational, or day programs.
✗ Skip if Clinicians who work only with children under 18 or with populations without ID.

01Research in Context

01

What this study did

Simpson et al. (2001) tracked every person with intellectual disability in Finland for 35 years. They used national death records to see which diseases actually kill people with ID.

The team compared death rates to the general population and looked at how age changed the picture.

02

What they found

Heart and lung diseases are the top killers in adults with ID, especially at younger ages.

Cancer and accident deaths are lower than in the general public.

The gap shrinks as people get older, but early deaths remain common.

03

How this fits with other research

Tassé et al. (2013) seems to disagree. They found heart-attack and stroke rates the same as the general population after age 50. The difference: K et al. counted deaths, while J et al. counted new cases. People with ID may survive heart events less often, so mortality stays high even if incidence is equal.

Grindle et al. (2012) help explain why. They showed half of older Dutch adults with ID had undiagnosed high blood pressure or diabetes. Missed risk factors feed the fatal outcomes seen in K et al.

Diaz (2020) offers hope. In U.S. data, just ten minutes of daily leisure walking cut all-cause mortality in adults with ID. The same Finnish group that dies too early can gain years through modest activity.

S-Eisenhower et al. (2006) proved action works. A one-time tailored health screen doubled detection of hidden problems and fixed more of them within a year.

04

Why it matters

You can’t change the 35-year past, but you can change the next clinic visit. Run blood-pressure, glucose, and cholesterol checks on every adult with ID, starting in their 20s. Add a brisk ten-minute walk to daily programs and teach staff to spot breathing or chest complaints early. These small moves tackle the exact causes—heart and lung disease—that steal years from this population.

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Schedule a ten-minute group walk and book annual BP, glucose, and lung-function checks for every adult client.

02At a glance

Intervention
not applicable
Design
other
Sample size
2369
Population
intellectual disability
Finding
not reported

03Original abstract

The aim of the present study was to investigate cause-specific mortality in people with intellectual disability (ID). It was based on a 35-year follow-up study of a nation-wide population of 2369 subjects aged between 2 and 97 years. The 1095 deceased people had accumulated 64 539 person-years. The research took the form of a prospective cohort study with mortality follow-up. Observed and expected deaths were calculated as standardized mortality ratios using the Finnish general population as the reference. Cause-specific mortality ratios were calculated by the level of ID, sex and age. The three most common causes of death were cardiovascular diseases, respiratory diseases and neoplasms. Disease mortality was high up to 40 years of age, but did not increase thereafter. The difference between sexes in cause-specific mortality was smaller than in the general population. Cause-specific mortality differed significantly from the general population, with reduced mortality from neoplasms and external causes, but ageing individuals with mild ID had similar mortality patterns to the general population. The disparities in the cause-specific mortality between younger people with ID and the general population fade with advancing age, producing similar health risks. In preventative work, special attention should focus on common diseases and accidents in the community.

Journal of intellectual disability research : JIDR, 2001 · doi:10.1046/j.1365-2788.2001.00290.x