Bone Mineral Density Screening in People With Epilepsy and Intellectual Disability.
Adults with both epilepsy and ID are skipping the bone scan they need most.
01Research in Context
What this study did
Gandelman-Marton et al. (2024) compared bone checks in two groups. One group had epilepsy plus intellectual disability. The other group had epilepsy only.
They looked at how many people ever had a DXA scan. DXA is the X-ray test that shows bone strength. They also counted who took vitamin D pills.
What they found
Zero people with epilepsy plus ID had the scan. That is 0 out of 68.
In the epilepsy-only group, about 12 out of 100 had the scan. More people with epilepsy plus ID were taking vitamin D, but no one checked their bones first.
How this fits with other research
Mount et al. (2011) already warned that adults with ID have many bone risks. Their review said, "Screen these adults." The new study shows doctors still do not do it.
Aznar et al. (2005) found anticonvulsant drugs weaken bones in people with ID. Revital’s team now shows that even with these drugs, scans are missing.
Lotfizadeh et al. (2020) showed older adults with ID get fewer cancer diagnoses. The same gap appears here: needed tests simply do not happen.
Why it matters
If you support adults with epilepsy plus ID, add DXA to the yearly checklist. No scan means you can’t see osteoporosis until a bone breaks. A quick order saves pain, surgery, and early death. Start today: ask when each client last had a bone scan. If the answer is "never," refer now.
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02At a glance
03Original abstract
Vitamin D measurements and dual energy x-ray absorptiometry (DXA) scans are recommended in people with intellectual disability and/or epilepsy in order to prevent bone-linked harm. The prevalence of vitamin D supplementation and bone mineral density screening were evaluated in 68 people with epilepsy and intellectual disability (EID) and 68 matched controls with epilepsy without intellectual disability. DXA scans were not performed in any of the people with EID but were performed in 11.8% of the people in the control group. People with EID had a higher vitamin D supplementation rate and were treated with more antiepileptic drugs (AEDs) and more AED combinations, including first generation AEDs. Increased awareness of bone health screening in people with epilepsy and especially EID is warranted.
American journal on intellectual and developmental disabilities, 2024 · doi:10.1352/1944-7558-129.6.453