Assessment of autism in community settings: discrepancies in classification.
Community autism evaluations agree less than half the time and rarely follow best-practice or bilingual standards.
01Research in Context
What this study did
Lancioni et al. (2009) looked at how often community clinicians agree on an autism diagnosis. They reviewed records of preschoolers sent to public clinics for evaluation.
Two independent reviewers checked each file. They scored whether the child met autism criteria and if the report followed best-practice rules like using a second language when needed.
What they found
The reviewers agreed on autism yes-or-no only 45 percent of the time. Most reports skipped key steps such as bilingual testing or clear behavior descriptions.
In short, community teams gave different answers about the same child and rarely used the full checklist experts recommend.
How this fits with other research
Taylor et al. (2017) saw the same problem. Their expert judges watching ADOS videos also agreed only one-third of the time. Together the two papers show poor reliability across both live clinics and filmed exams.
Stadnick et al. (2015) offers a bright spot. When community clinicians stuck to the ADOS script for school-age kids, their labels matched later diagnoses. The difference: Nicole’s teams had extra ADOS training while E’s teams used free-form reports.
Myers et al. (2018) helps explain the mess. Agreement drops when families are low-income or African American, groups that filled many of E’s clinics. The studies stack up to say: method matters and so does family context.
Why it matters
If you rely on outside evaluations, know that a coin-flip could match the odds those reports agree. Ask for the tools used and look for ADOS, ADI-R, or bilingual steps. When reports conflict, schedule your own direct observation and gather parent plus teacher data before you write goals or recommend services.
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02At a glance
03Original abstract
Review of 78 evaluations for 29 young children examined practices used in assessment of autism spectrum disorders in three settings: public schools, developmental disabilities eligibility determinations, and our hospital-based early childhood mental health program. While similar rates of classification of autism spectrum disorders were found across sites, the rate of agreement by different evaluators for individual children was only 45%. Further, most community evaluators did not follow best practice guidelines nor use autism diagnostic tools with established psychometric properties. In this sample of primarily Latino, Spanish-speaking children, most community evaluators did not document assessment of the child in their native language, nor address the impact of language in their assessments.
Journal of autism and developmental disorders, 2009 · doi:10.1007/s10803-008-0668-1