Working with Children with Autism Spectrum Disorder in a Medical Setting: Insights from Certified Child Life Specialists.
Hospital staff still feel unprepared for kids with autism—use parent input and push for short, autism-only training blocks.
01Research in Context
What this study did
Child Life Specialists (CCLS) filled out a survey. They work in hospitals with kids who have autism.
They rated how ready doctors and nurses are to treat these children. They also listed what helps or hurts care.
What they found
Staff feel lost. CCLS say most workers do not know how to calm, talk to, or examine kids with ASD.
The fix: pull parents onto the care team and give staff autism-only training.
How this fits with other research
Granillo et al. (2022) looked at 17 studies and found autism training does boost doctor skill and confidence. That seems opposite to our target paper, but the gap is real-world use. Training exists; hospitals just are not requiring it.
Marrus et al. (2014) saw the same hole years earlier. Child psychiatry fellows got only 3–4 hours of autism class. The new survey shows the hole is still there in hospitals.
Arsham et al. (2025) built a Qatar clinic that does what the CCLS ask: team care plus parent voice. Parents loved it, proving the idea works outside the U.S.
Why it matters
You can hand Lauren’s review to your medical partner and say, “Train here.” Push for short, autism-only modules. Offer to co-teach. Also, tell nurses to ask parents first: “What calms her?” That one step cuts meltdowns and builds trust fast.
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02At a glance
03Original abstract
This study aimed to gain an understanding of Certified Child Life Specialists' (CCLS) experiences with and suggestions for working with children with autism spectrum disorder (ASD) in a medical setting. Using a mixed-method design, 118 CCLS completed an online survey and 16 participated in follow-up interviews. Participants believed many medical professionals, including CCLS, are not adequately prepared to work with children with ASD, negatively impacting quality of care. Participants emphasized that outcomes are best for children with ASD when parents and medical staff collaborate to meet the unique needs of each child. CCLS reported working with children with ASD can provide insights for enhancing the quality of care for all children. Participants' suggestions for training and resource development are discussed.
Journal of autism and developmental disorders, 2020 · doi:10.1007/s10803-019-04245-0