Who participates in support groups for parents of children with autism spectrum disorders? The role of beliefs and coping style.
Parents who feel they cope well keep coming to support groups, so lower the entry barriers and teach coping skills up front.
01Research in Context
What this study did
Clifford et al. (2013) asked parents of kids with autism who joins support groups and who drops out.
They sent surveys to three groups: current users, past users, and parents who never tried.
The survey looked at coping style, beliefs about autism, and what gets in the way.
What they found
Parents who stay in groups say they cope better and feel the group really helps.
Parents who quit or never go say the group is hard to reach or does not fit their style.
The biggest barrier was simple: time, place, or child care.
How this fits with other research
Zaidman-Zait et al. (2018) widened the lens. They mapped whole-family resources and linked low resources to both high parent stress and low child skills. Tessen’s focus on parent-only groups fits inside this bigger picture.
Perez et al. (2015) saw the same pattern in parents with intellectual disability: more social support lowers stress, money does not. The coping-resource link crosses diagnoses.
Muniandy et al. (2022) flipped the view to autistic adults. Low-resilience coping raised stress, just like Tessen saw in parents. Coping style matters at every age.
Why it matters
If you run parent support groups, make them easy to reach. Offer child care, rides, or online nights. Ask new members how they cope and teach quick coping tools in session one. Parents who feel they cope well stay, and staying keeps them coping.
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02At a glance
03Original abstract
One hundred forty-nine parents of children with autism spectrum disorders (ASD) completed online questionnaires measuring their beliefs about support groups and ASD, coping style, social support, mood, and use of support groups. Those currently using parent support groups (PSGs) reported using more adaptive coping strategies than both parents who had never used PSGs and parents who had used PSGs in the past. Past PSG users reported that they did not find the groups as beneficial as current users, and parents who had never participated in PSGs reported difficulties with the accessibility of PSGs. Based on the current results, interventions for parents of children with ASD that are focused on meeting the needs identified by participating parents may be most effective.
Journal of autism and developmental disorders, 2013 · doi:10.1007/s10803-012-1561-5