Service Delivery

The relationship between living arrangement and adherence to antiepileptic medications among individuals with developmental disabilities.

Hom et al. (2015) · Journal of intellectual disability research : JIDR 2015
★ The Verdict

Adults with ID who live outside group homes refill epilepsy drugs less reliably—so add supports.

✓ Read this if BCBAs serving adults with ID in family or semi-independent homes.
✗ Skip if Clinicians whose caseload is already in staffed group homes.

01Research in Context

01

What this study did

Ohan et al. (2015) compared how well adults with intellectual disability stick to their epilepsy medicine. They looked at pharmacy refill records across three living setups: family homes, semi-independent places, and group homes.

The team used a quasi-experimental design. They ranked adherence by how often prescriptions were filled on time.

02

What they found

People in family or semi-independent homes had lower adherence than those in group homes. The gap was big enough to matter clinically.

No other factor, like age or sex, explained the difference. Living arrangement alone predicted who missed doses.

03

How this fits with other research

At first glance this clashes with Pilowsky et al. (1998) and Singh et al. (1991). Those studies praised smaller, community settings for boosting independence and life satisfaction. They painted group homes as overly supervised and limiting.

The key is the outcome measured. Pilowsky et al. (1998) looked at adaptive behavior and happiness. Ohan et al. (2015) looked at pill-taking. A setting can give freedom and still leave medical needs unattended.

Qian et al. (2015), published the same year, adds a clue. They found that staff skill in group homes predicts resident engagement. Better staff may be why group homes also win on medication adherence.

04

Why it matters

If your client lives with family or alone, build extra layers of support. Add visual schedules, phone alerts, or nurse check-ins. Do not assume family care equals good care. Treat low supervision as a red flag for medication management and plan accordingly.

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→ Action — try this Monday

Call the pharmacy and set up automatic refill reminders for your client living at home.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
793
Population
intellectual disability
Finding
negative

03Original abstract

BACKGROUND: Non-adherence to antiepileptic drugs (AEDs) is associated with considerable morbidity and mortality in the general population but little is known about adherence in individuals with intellectual disability (ID). METHOD: Using the records of a closed pharmacy billing system over a 30 month period, we examined the medication non-adherence rates for AEDs among 793 individuals with ID. We calculated the medication possession ratio (number of days each participant was in possession of an AED), and defined non-adherence as 25% or more of the exposure days without the possession of an AED. All participants studied had filled prescriptions for AEDs spanning at least 6 months. RESULTS: Controlling for age and gender, we found non-adherence rates varied by living arrangement. Compared with those living in group homes, individuals with ID living in family homes or in semi-independent settings were significantly less adherent to AEDs (P < 0.0003). CONCLUSION: Non-adherence to AEDs is a potential medical risk for individuals with ID that is significantly impacted by the type of community living arrangement.

Journal of intellectual disability research : JIDR, 2015 · doi:10.1111/jir.12123