The IDD Paradigm of Shared Citizenship: Its Operationalization, Application, Evaluation, and Shaping for the Future.
Treat people with IDD as citizens first, clients second—shape every program around that truth.
01Research in Context
What this study did
Pettingell et al. (2022) mapped a new way to think about people with intellectual and developmental disabilities.
They call it the shared citizenship paradigm.
The paper explains what it means, how to use it, and how to check if it works.
What they found
Shared citizenship says people with IDD are full members of society, not just service users.
Programs should help them take part like anyone else.
The authors give steps to plan, run, and measure services that follow this idea.
How this fits with other research
The idea builds on Nordic work. Stein (1997) showed that moving people out of big institutions works when safety and choice stay balanced.
Later studies show how to make citizenship real. Whiteside et al. (2022) tell us to pay and define roles so people with IDD help run research, not just answer surveys.
Rashid et al. (2017) show employment staff how to teach bosses to see workers with disabilities as equal team members.
Friedman (2021) found that supports shaped to each person help adults with dual diagnosis join community life.
All these papers turn the big idea into day-to-day action.
Why it matters
You can use the citizenship lens today. Ask, "Does this goal help the person belong like any neighbor?" If not, change the goal. Add peer mentoring, fair pay, or boss education. Small shifts move services from care-taking to rights-based.
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02At a glance
03Original abstract
Changes in the field of intellectual and developmental disabilities (IDD) over the last 5 decades has resulted in the emergence of the shared citizenship paradigm. This paradigm is currently guiding the development of IDD-related policies and practices, and providing a framework for application, research-based inquiry, and evaluation. A shared citizenship paradigm is one that envisions, supports, and requires the engagement and full participation of people with IDD as equal, respected, valued, participatory, and contributing members of every aspect of society. The overall goals of the paradigm are to (a) further advance and focus on people with IDD as active agents in the change process, and (b) improve outcomes for people with IDD, including their access to and opportunity for shared citizenship. This article describes the paradigm's operationalization, application, evaluation, shaping for the future, and specific strategies to overcome implementation challenges.
Intellectual and developmental disabilities, 2022 · doi:10.1352/1934-9556-60.5.426