Service Use Among Transition-Age Youth with Autism Spectrum Disorder.
Black autism research has ignored family strengths like spirituality and informal supports—build these into caregiver coaching and community programs.
01Research in Context
What this study did
Sasson et al. (2022) read 28 studies about Black families who have teens and young adults with autism. They looked for what the research talked about and what it left out.
The team wanted to see if studies noticed family strengths like church life, neighbor help, and parent advocacy. They also checked if papers only listed problems or also pointed to solutions.
What they found
Most papers focused on what families lacked, not on what they already did well. Strengths such as faith, informal support, and caregiver grit were barely studied.
The review calls for programs that start with these strong points instead of starting with deficits.
How this fits with other research
Mae Simcoe et al. (2018) and McKenzie et al. (2015) showed Black caregivers often feel dismissed by doctors. Sasson et al. (2022) does not deny these barriers; it says we must also map the assets families use to survive those same barriers.
Sánchez-Luquez et al. (2025) found that family navigation helps parents get more services, but no study asked if navigation builds on spiritual or neighbor networks. Sasson et al. (2022) fills that gap by telling us to embed those natural supports into navigation plans.
Balser et al. (2026) extend the focus to all intersectionally minoritized caregivers of transition-age youth. They worry about future research gaps, while Sasson et al. (2022) supplies a concrete fix: start with Black family strengths and scale the idea to other groups.
Why it matters
If you coach caregivers or run community programs, begin sessions by asking what church, cousin, or neighbor already helps the family. Build goals around those existing roots instead of imposing outside fixes. This simple flip can boost engagement and trust from the very first meeting.
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02At a glance
03Original abstract
Gaps in research knowledge pertaining to resiliency factors and strengths among the Black autism community, inclusive of autistic persons and their support system exist. A scoping review was conducted to further explore quantitative, qualitative, and mixed methods studies that investigate resiliency factors and related strengths in the Black autism community in the United States. A total of 436 articles were identified, with 28 studies included in the final review. Results demonstrated that (1) strengths of Black autistic persons across the life course have been disregarded in research; (2) Black caregiver advocacy, while common, is also a developmental process that can be supported by community-based interventions; (3) informal supports including family and friends play an instrumental role in supporting the well-under investigated being of Black parents of autistic children; and (4) spirituality is often endorsed by Black caregivers of autistic children, such as playing a role in acceptance of the autism diagnosis and with coping with difficult life situations. Research and practice implications are discussed.
Journal of autism and developmental disorders, 2022 · doi:10.1007/s10803-019-04131-9