Service Delivery

Quality of Life Outcome and Support Disparities Among People With More Severe Impairments.

Friedman (2020) · Intellectual and developmental disabilities 2020
★ The Verdict

Severe impairment predicts both poorer quality of life and fewer agency supports for people with IDD.

✓ Read this if BCBAs writing ISPs or waiver plans for adults with severe intellectual or developmental disabilities.
✗ Skip if Clinicians focused only on skill acquisition data with no role in service authorization.

01Research in Context

01

What this study did

Friedman (2020) looked at how impairment level affects daily life for people with intellectual or developmental disabilities. The study compared those labeled "more severe" against those with milder support needs.

Researchers measured quality of life across home, work, and social settings. They also counted the formal supports each person got from agencies.

02

What they found

People with severe impairments scored lower on almost every quality-of-life domain. They also received fewer organizational supports than peers with milder needs.

The gap was wide: less help translated directly into poorer living situations, jobs, and social ties.

03

How this fits with other research

Lunsky et al. (2001) seems to disagree. That study showed social support lifts quality of life for adults with mild ID. Carli’s data say the same boost never reaches people with severe needs, so the two papers together draw a line between mild and severe.

Cramm et al. (2009) paved the way. They showed everyday functional ability, not the diagnosis name, drives health risks in older adults with IDD. Carli extends the idea: severity shapes life quality and support access at every age.

Kleinert et al. (2007) add the IQ link. Lower IQ and weaker social skills predicted lower self-determination and life satisfaction. Carli’s severity lens shows the pattern holds when you look at overall impairment level instead of test scores.

04

Why it matters

If you write plans for adults with IDD, flag the "severe" label as a risk factor for under-service. Use Carli’s findings to justify more authorized hours, job coaching, or community supports in the ISP. Push funders past the old "mild gets help, severe gets placement" rule. Extra supports now can prevent costly crises later.

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Add a justification page to the next severe-ID ISP that cites severity-linked under-service and requests increased day-program or job-coaching hours.

02At a glance

Intervention
not applicable
Design
other
Sample size
1300
Population
intellectual disability, developmental delay
Finding
negative

03Original abstract

People with intellectual and developmental disabilities (IDD) with more severe impairments often face service disparities. The aim of this study was to explore not only disparities in quality of life outcomes for people with IDD with severe impairments, but also disparities in the supports they receive from disability service organizations. Our analysis of Personal Outcome Measures interviews from 1,300 people revealed people with severe impairments experienced quality of life disparities in most domains, attributed to the fact that they also received fewer organizational supports than people with less severe impairments. By paying attention to person-centered outcomes, including these disparities, organizations' roles can shift from just providing services to supporting people to achieve the outcomes that are truly important to them.

Intellectual and developmental disabilities, 2020 · doi:10.1352/1934-9556-58.6.513