Service Delivery

Psychotropic and Anticonvulsant Medication: Individuals With Intellectual and Developmental Disabilities Who Transitioned to the Community From an Institution.

Kelly et al. (2015) · Intellectual and developmental disabilities 2015
★ The Verdict

Leaving an institution can trigger a long, sharp rise in psychotropic and seizure medicines for adults with IDD.

✓ Read this if BCBAs helping adults with IDD move from institutions to community homes.
✗ Skip if Clinicians who only serve children already stable in family homes.

01Research in Context

01

What this study did

Faja et al. (2015) tracked psychotropic and seizure medicines in adults with intellectual or developmental disabilities.

They compared two groups: adults who had just left large institutions and adults already living in group homes.

The team watched prescription counts for both groups to see if moving changed drug use.

02

What they found

Medicine use went up in both groups, but the jump was steeper for the newly moved group.

The rise happened soon after the move and kept climbing during the study window.

03

How this fits with other research

Nøttestad et al. (2003) saw almost no change in neuroleptic doses after moves. The key gap is time: Aa looked only six months out, while Susan watched longer and caught the later surge.

Agiovlasitis et al. (2025) later showed that brief staff training can cut antipsychotic doses in community homes. Their result points to a fix: give staff behavior tools so doctors feel safe tapering.

Klein et al. (2024) found youth with IDD are five times more likely to be on two or more psychotropics at once. Susan’s adult trend and the youth data together paint a picture of rising polypharmacy across the lifespan after leaving institutional care.

04

Why it matters

Community placement is meant to improve life, yet pill counts can quietly climb. You can stem the rise by scheduling medication reviews at 30, 90, and 180 days post-move. Pair each review with a functional behavior assessment so team members have data to justify gradual dose cuts.

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→ Action — try this Monday

Add a 90-day medication-review reminder to the transition checklist and bring baseline behavior data to the meeting.

02At a glance

Intervention
not applicable
Design
quasi experimental
Population
intellectual disability, developmental delay
Finding
positive

03Original abstract

Influenced by Georgia's settlement agreement with the United States Department of Justice relating to the enforcement of the Americans with Disabilities Act, an increasing number of individuals with intellectual and developmental disabilities (IDD) are transitioning from institutions to community living. In this study we evaluate the pattern of medication use among individuals who recently transitioned to the community (IRTC), comparing results to the IDD population already residing in the community (comparison group). Average use and prevalence rates were trended over time, between January 1, 2010, and December 31. 2012. Findings indicate a significant increase in medication use in the IRTC and comparison group, with a greater and faster increase in the IRTC population. We suggest the transition process should be examined and revised, ensuring adequate preparation time and training for each person and relevant staff, particularly on medications and challenging behaviors. Several demographic trends were also significant and are discussed.

Intellectual and developmental disabilities, 2015 · doi:10.1352/1934-9556-53.4.289