Service Delivery

Providers' perspectives on factors complicating the culturally sensitive care of individuals with intellectual disabilities.

van Herwaarden et al. (2020) · Research in developmental disabilities 2020
★ The Verdict

Culturally sensitive care for ethnic minority clients with ID fails at eight linked points, but you can shore up each point before the session starts.

✓ Read this if BCBAs serving ethnic minority clients with ID in clinic, school, or residential settings.
✗ Skip if Practitioners with a caseload that is already culturally matched and fluent in English.

01Research in Context

01

What this study did

van Herwaarden et al. (2020) interviewed care providers about ethnic minority clients with intellectual disability. They asked what makes culturally sensitive care hard.

The team found eight trouble spots. These include how the client communicates, how the family talks with staff, and rules inside the service system.

02

What they found

Providers said three groups of barriers pop up. First, client factors like limited speech. Second, professional factors like staff not knowing the culture. Third, system factors like short visit times.

All eight barriers overlap. A client who speaks little English plus a translator who is not there plus a clinic that books fifteen-minute slots equals missed care.

03

How this fits with other research

Wang et al. (2021) asked Black and Latinx adults with IDD what blocks their care. Clients named distrust and not knowing where to go. Aniek’s providers named similar blocks, but from the staff side. The two studies line up.

Winburn et al. (2014) reviewed caregiver struggles around sexuality. Providers in that review also felt fear and role conflict. Aniek widens the lens from sexuality to every part of cultural care.

Malik et al. (2017) talked with British South Asian women with ID. The women said good support helped them feel proud of who they are. Aniek shows why that good support is rare—staff juggle eight complications at once.

04

Why it matters

You can’t fix cultural mismatch by translating a form. Check each of the eight barriers before the first visit. Is an interpreter booked? Do family elders need a separate chat? Does the day program allow extra time? Tweak these small system pieces and you raise the odds that ethnic minority clients actually get care that fits them.

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02At a glance

Intervention
not applicable
Design
qualitative
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: Culturally sensitive care is essential for improving healthcare for ethnic minorities with intellectual disabilities (ID), who require intensive, sometimes lifelong, care and support. AIMS: The present study aimed to uncover factors that may complicate the delivery of culturally sensitive care for ethnic minorities with ID, which have not previously been studied for this group. METHODS AND PROCEDURES: By means of in-depth interviews with care professionals we identified these factors at the care receiver, professional, and institutional levels. OUTCOMES AND RESULTS: Eight factors were found to complicate the delivery of culturally sensitive care: abilities of the individuals with ID, communication with the family of the care receiver, cultural competency of the professional, personal attitude and experience of the professional, job position and responsibilities of the professional, resources, legislation and protocols, and the team of colleagues. The factors at the care receiver level were specific for the delivery of culturally sensitive care to individuals with ID. CONCLUSIONS AND IMPLICATIONS: In addition to the complicating factors previously identified for other forms of culturally sensitive healthcare, we identified novel complicating factors for the care of individuals with ID. Future research should investigate how these complicating factors could be overcome.

Research in developmental disabilities, 2020 · doi:10.1016/j.ridd.2019.103543