Predictors of Age of Diagnosis for Children with Autism Spectrum Disorder: The Role of a Consistent Source of Medical Care, Race, and Condition Severity.
Steady doctor visits speed autism diagnosis for White children but not Black children, showing that access alone is not equity.
01Research in Context
What this study did
The team looked at survey answers from families who have a child with autism.
They wanted to know what helps kids get diagnosed earlier.
They checked if steady doctor visits, race, and autism severity changed the age of diagnosis.
What they found
White children who saw the same doctor every year were diagnosed earlier than White children without that steady care.
Black children did not get diagnosed any faster even when they had the same steady doctor.
Autism severity mattered for both groups; more obvious signs led to earlier diagnosis.
How this fits with other research
Stewart et al. (2018) extends this story. After diagnosis, families waited almost three more years to start funded ABA, and race did not predict that wait.
Diemer et al. (2023) shows the same pattern for toddlers in Early Head Start: Black and Hispanic children are less likely to receive any developmental evaluation by age three.
Together the three papers paint one picture: race blocks entry at every door—first evaluation, then diagnosis, then therapy—even when families have insurance or a regular doctor.
Why it matters
You can’t fix what you don’t measure. When you assess a new client, note how long the family waited and how many doors they knocked on. If the child is Black, double-check that medical records are complete; families may have been skipped even with steady care. Share this data with pediatricians and referral sources to push for universal screening, not just “good” offices.
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Join Free →Add two quick questions to your intake form: “How many years have you seen the same pediatrician?” and “How many evaluations were refused or delayed?” Flag any Black family who still waited long and offer to write a doctor letter supporting earlier re-screening for siblings.
02At a glance
03Original abstract
Having a consistent source of medical care may facilitate diagnosis of autism spectrum disorders (ASD). This study examined predictors of age of ASD diagnosis using data from the 2011-2012 National Survey of Children's Health. Using multiple linear regression analysis, age of diagnosis was predicted by race, ASD severity, having a consistent source of care (CSC), and the interaction between these variables after controlling for birth cohort, birth order, poverty level, parental education, and health insurance. While African American children were diagnosed earlier than Caucasians, this effect was moderated by ASD severity and CSC. Having a CSC predicted earlier diagnosis for Caucasian but not African American children. Both physician and parent behaviors may contribute to diagnostic delays in minority children.
Journal of autism and developmental disorders, 2016 · doi:10.1007/s10803-015-2555-x