"It was like everything happened at once": Interviews with parents about having a child with intellectual disability and behaviours that challenge.
Chilean parents see challenging behaviour as a social puzzle, not a family flaw—so widen your intervention lens beyond the home.
01Research in Context
What this study did
Constanza and her team sat down with Chilean parents who raise a child with intellectual disability plus challenging behaviour. They asked open questions and recorded the parents' own words.
The goal was to learn how these parents make sense of their daily experiences. No tests, no surveys—just stories.
What they found
Three clear themes popped out. Parents said life feels like 'everything happened at once.' They see the troubles as rooted in society, not just inside their child or themselves.
In short, they blame lack of support, bad services, and stigma more than any single behaviour.
How this fits with other research
McKenzie (2011) looked at UK services for the same group and found most models weak or even harsh. The new Chilean voices agree services fall short, but they add a cultural layer: parents want the whole neighbourhood to help, not just a clinic.
van Herwaarden et al. (2020) interviewed providers who listed eight barriers to culturally sensitive care. The parents here echo those barriers, but turn them upside down: they frame the problem as social exclusion, not client deficit.
Aznar et al. (2005) showed mothers of teens with ID feel their own identity shatter. The Chilean mums feel that too, yet they link the pain directly to missing community supports, giving professionals a clearer to-do list.
Why it matters
If you write behaviour plans in isolation, parents may smile and still feel failed. Ask about buses, parks, churches, and cousins. Build goals that pull in teachers, neighbours, and local agencies. When you treat the whole ecology, you honour these parents' view that 'everything happened at once' can be fixed only when everything helps at once.
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02At a glance
03Original abstract
This article explores the experiences of parents of children and adolescents with intellectual disability who exhibit behaviours that challenge (BtC). Using a qualitative approach, fifteen mothers and three fathers participated in in-depth interviews, which were coded using thematic analysis. We found three themes: (1) parents' experiences raising a child with intellectual disability and BtC, (2) parents' attributions regarding their child's BtC, and (3) parents' perceptions about factors that have supported or hindered their role as parents. Findings offer a situated account of experiences shaped by children's needs and broader sociocultural and structural dynamics. This research highlights how parenting a child with intellectual disability and BtC is not solely a matter of individual or familial responsibility, but it is embedded in collective social arrangements. This contributes to a contextualised understanding of parenting processes in complex situations, promoting the development of family-centred and culturally relevant supports within the Chilean context.
Research in developmental disabilities, 2026 · doi:10.1016/j.ridd.2026.105230