How to support adults with anorexia nervosa and autism: Qualitative study of clinical pathway case series.
Write down each client’s preferred way to communicate before you start eating-disorder treatment, then track if that simple change actually helps.
01Research in Context
What this study did
Li et al. (2022) asked eating-disorder clinicians to describe what happens when an adult has both anorexia nervosa and autism. They collected a small case series and ran a qualitative analysis.
The team pulled out eight common trouble spots and four fixes the clinicians tried. The study did not test whether the fixes actually work.
What they found
The clinicians said the biggest headaches were rigid thinking, sensory issues around food, trouble reading body signals, and communication mismatches.
The four most-used adaptations were writing down each client’s preferred communication style, using plain language, giving extra processing time, and letting the client keep familiar routines.
How this fits with other research
Dababnah et al. (2025) reviewed hospital care and found ‘autism-friendly’ means flexible people, place, and time. Li’s four adaptations line up perfectly with that framework.
MPayne et al. (2020) warned that standard self-report tools can misread autistic adults. Li echoes this by telling clinicians to document preferred communication before trusting any self-report during eating-disorder work.
Hwang et al. (2019) showed autistic adults die at twice the rate of peers, often from untreated medical or mental-health conditions. Li’s paper gives front-line behavior staff a starting list of tweaks that could keep these clients engaged in life-saving treatment.
Why it matters
If you work with autistic adults, add a one-page ‘communication profile’ to your intake packet. Ask how they want to receive instructions, how much processing time they need, and what sensory cues help or hurt. Use that sheet to shape every session. Li’s team showed this tiny step is the adaptation clinicians reach for first, but no one has proven it works yet—so you can collect data and help fill that gap.
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02At a glance
03Original abstract
Previous research has explored the overlapping presentation between autism and eating disorders (ED). This study aims to summarize the clinical challenges associated with co-occurring autism and anorexia nervosa (AN) based on clinicians' case notes and minutes from case discussions, to understand how to better support people with the comorbidity. Thematic analysis was conducted on de-identified notes on 20 cases with AN and autistic characteristics and minutes from case discussions. Themes relevant to clinical challenges in supporting those with the comorbidity were identified, and a thematic map was produced to visually represent the results. The key challenges faced by clinicians when treating patients with AN and autism included: communication difficulties, maintaining boundaries, autism screening, presence of other comorbidities, sensory difficulties, atypical presentation of eating difficulties, cognitive rigidity, and emotional difficulties. Adaptations to resolve some of these difficulties included exposure-based food experiments, keeping a record of patients' self-reported communication preferences, individual-level modification of communication style, and providing tools for patients to identify emotions. Further exploration to establish the effectiveness of the adaptations is warranted. Furthermore, tools for differentiating between ED, autism and other comorbidities are needed to help clinicians clarify the cause of a presenting symptom, and help them to best support and maintain boundaries with patients.
Frontiers in Psychiatry, 2022 · doi:10.3389/fpsyt.2022.1016287