Service Delivery

How many doctors does it take to make an autism spectrum diagnosis?

Goin-Kochel et al. (2006) · Autism : the international journal of research and practice 2006
★ The Verdict

Cut the number of professionals and the wait time—parents feel far better about the autism diagnosis when the path is short and early.

✓ Read this if BCBAs who help families navigate the diagnostic maze.
✗ Skip if Clinicians only doing therapy after diagnosis is already set.

01Research in Context

01

What this study did

Howlin et al. (2006) asked parents how they felt about the steps that led to their child’s autism diagnosis.

They used a survey. Parents answered questions about how many doctors saw their child, how long it took, and how satisfied they were.

02

What they found

Parents liked it best when fewer professionals were involved.

They also liked getting the news at a younger age.

Families with more money or education reached the diagnosis sooner.

03

How this fits with other research

Guillon et al. (2022) asked the same kind of questions across Europe. They also found that speed matters, but they say good guidance matters more than counting doctors.

Wieckowski et al. (2022) took the idea further. They drew a map where the child’s own pediatrician can give the diagnosis for clear cases. This plan would cut the line and start help months earlier.

Sun et al. (2014) show why money keeps showing up: richer parents speak up sooner, so their kids enter the path earlier.

04

Why it matters

You can tighten your own referral chain today. Skip extra hand-offs when the picture looks clear. Pair families with one point person who keeps them in the loop. Less wait time and fewer faces in the room raise parent trust right when they need it most.

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→ Action — try this Monday

Review your current referral list and remove any duplicate evaluations for straightforward cases.

02At a glance

Intervention
not applicable
Design
survey
Sample size
494
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Parents of children with pervasive developmental disorders (n = 494) were surveyed to determine their level of satisfaction with the process of getting an autism spectrum diagnosis. Participants in this web-based study (mean age = 37.8 years) came from five countries and reported on children with an average age of 8.3 years (range = 1.7 to 22.1). All children had a diagnosis of either autism (59.9%), Asperger syndrome (23.5%), or PDD-NOS (16.6%). Higher levels of parental education and income were associated with earlier diagnosis and greater satisfaction with the diagnostic process. Parents were more satisfied with the diagnostic process when they saw fewer professionals to get the diagnosis and when the children received the diagnoses at younger ages.

Autism : the international journal of research and practice, 2006 · doi:10.1177/1362361306066601