Service Delivery

How do persons with intellectual disability manage in the open labour markets? A follow-up of the Northern Finland 1966 Birth Cohort.

Taanila et al. (2005) · Journal of intellectual disability research : JIDR 2005
★ The Verdict

Adults with intellectual disability still face high unemployment and hospital use decades after school, so behavior plans must include long-term work and health supports.

✓ Read this if BCBAs writing transition or vocational plans for teens and adults with ID.
✗ Skip if Clinicians focused only on early-childhood language or academic skills.

01Research in Context

01

What this study did

Nevin et al. (2005) followed adults with intellectual disability from a 1966 Finnish birth cohort. They looked at who worked, who stayed on disability pension, and who needed hospital care.

The team used government records to track jobs, pay, and health visits for the whole group. No new treatment was tested; it was a pure follow-up study.

02

What they found

Most adults with ID were on full disability pension. The few who worked had short, low-paid jobs with many lay-offs.

They also entered hospital more often than same-age peers without ID. Even mild ID led to poor work and health outcomes.

03

How this fits with other research

McQuaid et al. (2024) later showed the same risk pattern during COVID-19. Privately insured US adults with ID had 1.4 times the hospital odds and 2.7 times the death odds. The 2005 job gap and the 2024 virus data both say the same thing: adults with ID stay sicker.

Lemons et al. (2015) found that low IQ alone does not drive early death; lack of schooling explains most of the risk. This looks like a clash with Nevin et al. (2005), but the studies measured different things. A et al. counted jobs and hospital days; J et al. counted death certificates. School support may save lives even when jobs are still scarce.

Greenlee et al. (2024) now call for better data tags for people with IDD. Their paper folds the 2005 cohort into a wider plea: without good tracking, we will keep seeing the same poor work and health results.

04

Why it matters

For BCBAs, the message is clear: teaching vocational and daily-living skills is not enough if the client leaves school with no support network. Pair your skill programs with real work placements, medical care coordination, and long-term follow-up. One quick step you can take this week: add a brief job-health check-in to your monthly parent meeting. Ask if the adult client has seen a doctor, missed work, or lost a job. Early flags now can prevent hospital days later.

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Add one question about recent job loss or doctor visits to your next client check-in.

02At a glance

Intervention
not applicable
Design
other
Sample size
129
Population
intellectual disability
Finding
negative

03Original abstract

BACKGROUND: The aim was to study how many of the individuals with intellectual disability (ID; IQ < or = 70) in an age cohort were not receiving a disability pension by the age of 34 years and what their life situation was like in terms of employment, education and morbidity. In 2000, the Northern Finland 1966 Birth Cohort (n=12,058 live-born) included 129 individuals with ID. METHOD: The outcome data on employment, education, pensions and morbidity were obtained from national registers. RESULTS: A total of 85.3% (n=110) of all the individuals with ID were on pension, and 66 of them had severe ID (IQ <50) and 44 had mild ID (IQ 50-70). Altogether 99 were drawing a pension because of ID, and 11 had a main diagnosis other than ID in the register of Social Insurance Institution. Nineteen individuals with mild ID were not on disability pension. The educational level of those without pension was low, and all whose occupation was known worked in low-level manual trades in the open labour market. During the past 8 years (1993-2000), their employment rate had been lower and unemployment rate correspondingly higher and unemployment periods longer than those of the reference group (IQ >85 or not measured). As to the morbidity, they had been hospitalized twice more often than those in the reference group and the mean of their hospitalization days was over fourfold. CONCLUSION: More attention should be paid to the vocational education and supported employment services of individuals with ID to help them to manage as independently as possible.

Journal of intellectual disability research : JIDR, 2005 · doi:10.1111/j.1365-2788.2005.00648.x