Service Delivery

General practitioners' views on perceived and actual gains, benefits and barriers associated with the implementation of an Australian health assessment for people with intellectual disability.

Lennox et al. (2013) · Journal of intellectual disability research : JIDR 2013
★ The Verdict

GPs say the CHAP health check finds hidden medical issues in adults with ID, yet short appointments and absent support workers keep it on the shelf.

✓ Read this if BCBAs and support workers who accompany adults with intellectual disability to medical visits
✗ Skip if Clinicians who only treat children or who already use a different health-screening protocol

01Research in Context

01

What this study did

The researchers asked Australian GPs what they really think about the CHAP health check for adults with intellectual disability.

They ran focus groups and interviews. They wanted to know what helps and what blocks everyday use.

02

What they found

Doctors like the CHAP. They say it finds hidden problems and makes talking with patients easier.

But they also say time is too short and support workers rarely help. These two things stop them from using it.

03

How this fits with other research

DeLeon et al. (2001) showed the same tool catches lots of missed screenings. The new study explains why GPs still avoid it.

Iacono et al. (2004) heard the same story in rural towns: poor GP knowledge and low support-worker help. Together the papers paint one national picture.

Nevin et al. (2005) found practice nurses feel the same pinch. They want to help adults with ID but lack training and time.

04

Why it matters

If you work with adults with ID, you now know the CHAP works but only when support staff push it forward. Ask to sit in on the GP visit, bring the CHAP form, and help fill the gaps. One extra pair of hands beats one more policy memo.

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Print the CHAP form, review it with the client, and hand it to the GP at the next appointment

02At a glance

Intervention
not applicable
Design
qualitative
Sample size
46
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: Health assessments for people with intellectual disability have been implemented in the UK, New Zealand and Australia, and have led to improved health outcomes. The Comprehensive Health Assessment Program (CHAP) has been shown to improve the health of people with intellectual disability. Similar to other health assessments, it is designed to address healthcare needs, many of which are often overlooked in this population, through better communication between the general practitioner (GP), support worker and the person with intellectual disability. This study investigates GP views of the perceived and actual benefits, gains and barriers associated with its uptake and use in practice. METHOD: As part of a larger randomised controlled trial of the CHAP, 46 GPs in Queensland, Australia, completed two telephone interviews that included open-ended questions about their perceptions of the health assessment. The GPs were enrolled in the intervention arm of the trial. Interviews took place at commencement and conclusion of the trial to gain the views of GPs as they experienced using the CHAP. Thematic analysis was used to identify key themes and patterns from the GP responses. RESULTS: Four themes were identified: better healthcare and uncertain benefits captured GP perceptions of the potential gains associated with use of the CHAP, while two further themes, organisational barriers in the general practice setting and engagement across the healthcare triad highlighted strengths and barriers related to implementation. Anticipated concerns about time raised by GPs at commencement of the trial were borne out in practice, but concerns about communication and cooperation of people with disabilities were not. Matters associated with support worker engagement emerged as an area of concern. CONCLUSIONS: GPs perceive the CHAP as a structured and comprehensive approach to the detection of medical problems as well as an aid in overcoming communication barriers between the doctor and the person with disability. Our findings suggest that some GPs may find it difficult to predict the benefits of using health assessments such as the CHAP. Achieving optimal uptake is likely to require attention at policy and systems levels to address: GP time constraints in providing healthcare to this population; enhancement of support worker training and organisational structures to encourage comprehensive health assessment and follow-up activities; and GP awareness of the improved health outcomes shown to derive from the use of comprehensive health assessments.

Journal of intellectual disability research : JIDR, 2013 · doi:10.1111/j.1365-2788.2012.01586.x