Focus on interaction: the use of an Individualized Support Program for persons with profound intellectual and multiple disabilities.
Adults with PIMD end up with skimpy, interaction-only care plans unless you make the form ask for more.
01Research in Context
What this study did
Carla et al. (2009) watched how staff used a new planning tool called the Individual Support Program.
The tool was meant for adults with profound intellectual and multiple disabilities living in a large home.
Staff wrote short-term goals and long-term goals for each adult, then the researchers counted and coded them.
What they found
The plans had very few short-term goals.
Most long-term goals only talked about social interaction and little else.
Staff still liked the process and said it helped them think about the person, even though it took more time.
How this fits with other research
Maggio et al. (2023) ran a similar case-series design with autistic adults who also have ID. They set work goals in a sheltered art shop and saw gains in hours worked and self-help. Their goals were wider than just interaction, showing the same tool can cover more life areas when you ask for it.
Gandhi et al. (2022) audited transition IEPs for high-school students with autism. Like Carla et al., they found too few goals and a narrow focus. The pattern repeats: if the form does not force breadth, teams write only safe, social goals.
Ferguson et al. (2021) took a different path. Instead of better paperwork, they taught social skills directly to minimally-verbal adults with ID. All five adults learned new interaction moves, proving that when interaction is the real need, teaching beats planning alone.
Why it matters
Your ISP or IEP template should have a line that says "write at least five short-term goals" and another that says "include goals outside social skills." Without those prompts, teams default to tiny, interaction-only plans. Try it in your next plan meeting and see the difference.
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02At a glance
03Original abstract
In supporting individuals with profound intellectual and multiple disabilities (PIMD), professionals have expressed the need for a person-centered planning method especially targeted for the highly complex and specialized support needs of these clients. The current study has evaluated the effectiveness of an Individual Support Program especially developed for persons with PIMD. A total of 23 clients and 41 professionals of a residential facility in the Netherlands participated in the study. The content and number of goals were analyzed, as well as the specific "goal patterns" for individual clients. Furthermore, the ideas that direct-support persons had about the program, and the relationship between client characteristics and the aspects described were investigated. The number of long-term goals is as expected, but the number of short-term goals is much lower. Too, the content of the long-term goals shows little variety, as almost all long-term goals focus on interaction and social roles. The short-term goals mainly aim to gather information about the individual with PIMD without applying the gathered knowledge. Although professionals experience increased workload as a result, the implementation method used may still be considered as effective in care planning.
Research in developmental disabilities, 2009 · doi:10.1016/j.ridd.2008.12.005