Fathers' Orientation to their Children's Autism Diagnosis: A Grounded Theory Study.
Fathers need one set of tools to understand autism and a second set to explain it to the outside world.
01Research in Context
What this study did
The team interviewed fathers of children with autism. They asked how each dad first made sense of the diagnosis and how he later told relatives, neighbors, and schools.
The study used grounded-theory methods. That means they let the fathers’ own words build the story instead of testing a fixed checklist.
What they found
Fathers move through two clear steps. Step one: they work out what autism means for them. Step two: they figure out how to explain it to everyone else.
Each step brings different worries. Inside the house dads fear they will say the wrong thing. Outside the house they fear judgment and pity.
How this fits with other research
Siklos et al. (2007) already showed that all parents wait years and see many doctors before the label is given. García-Villamisar et al. (2017) zooms in on what happens after the label reaches the father.
Riccio et al. (2021) extends the story forward in time. Their work shows that teens who learn about autism early from parents feel better about themselves. Together the papers form a chain: father makes sense → father tells child → child forms identity.
Seymour et al. (2017) counts fathers’ stress and finds one in six feel high distress. García-Villamisar et al. (2017) gives the why behind that number: the double pressure to understand the news and to protect the family image.
Why it matters
You can split father support into two parts. First, give dads plain language facts and a place to ask dumb questions without shame. Second, coach them on simple scripts they can use with grandparents, coaches, and teachers. A five-minute role-play on how to say “autism” to Uncle Joe can cut Dad’s stress more than another brochure.
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02At a glance
03Original abstract
Sixteen fathers of individuals with autism were interviewed to develop a grounded theory explaining how they learned about their children's autism diagnosis. Results suggest the orientation process entails at least two phases: orienting oneself and orienting others. The orienting oneself phase entailed fathers having suspicion of developmental differences, engaging in research and education activities, having their children formally evaluated; inquiring about their children's prognosis, and having curiosities about autism's etiology. The orienting others phase entailed orientating family members and orienting members of their broader communities. Recommendations for responsive service provision, support for fathers, and future research are offered.
Journal of autism and developmental disorders, 2017 · doi:10.1007/s10803-017-3149-6