Service Delivery

Factors related to complications among adult patients with intellectual disabilities hospitalized at an academic medical center.

Ailey et al. (2015) · Intellectual and developmental disabilities 2015
★ The Verdict

Adults with ID face sharply higher odds of hospital complications if they have surgery or several chronic illnesses.

✓ Read this if BCBAs who support adults with ID and accompany them to medical visits.
✗ Skip if Clinicians who work only with typically developing children.

01Research in Context

01

What this study did

Doctors looked at the adults with intellectual disability who stayed in a teaching hospital. None were there for mental-health reasons.

The team counted who got pressure sores, infections, or other new problems after admission. They checked if surgery or long-term illnesses raised the odds.

02

What they found

Surgery tripled the risk of a fresh complication. Having three or more chronic illnesses also pushed risk way up.

In short, the sicker or more surgical the patient, the more likely something else went wrong in the hospital.

03

How this fits with other research

Patton et al. (2020) widens the warning. In a million-chart national set, adults with IDD were a large share more likely than typical adults to be hospitalized because of a medication mistake. Together the two papers show harm can strike both on the ward and before admission.

Sturmey et al. (1996) gives a game plan. Their dementia-care guidelines tell staff to spot small changes early and manage them in the community. Following those steps could keep some chronic conditions stable and out of the surgical suite, lowering the very risks H et al. flagged.

Nuebling et al. (2024) adds another gap: HIV testing for adults with IDD is almost zero. All three studies paint the same picture—this population gets less preventive care and then gets hurt more once inside the system.

04

Why it matters

If your client with ID needs surgery, talk to the team about pressure-sore watches, infection bundles, and med reconciliation. Push for pre-op clinics that follow P et al.’s three-step check. Document every chronic condition and hand the list to nurses on Day 1. These quick moves can turn a risky stay into a safer one.

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Add a one-page health passport listing diagnoses and meds to every adult ID file you carry to the hospital.

02At a glance

Intervention
not applicable
Design
case series
Sample size
70
Population
intellectual disability
Finding
negative

03Original abstract

People with intellectual disabilities (ID) represent a small but important group of hospitalized patients who have higher rates of complications than do patients without ID hospitalized for the same reasons. Complications are potentially avoidable conditions, such as healthcare-acquired infections, healthcare-acquired skin breakdown, falls, and medication errors and reactions. Addressing factors related to complications can focus efforts to improve hospital care. The purpose of this exploratory study was to analyze data from reviews of academic medical center charts (N  =  70) about complications and to examine patient and hospitalization characteristics in relation to complications among adult patients (age ≥ 18 years) with ID hospitalized for nonpsychiatric reasons. Adults with ID tended to be twice as likely to have complications (χ2  =  2.893, df  =  1, p  =  .09) if they had a surgical procedure and were nearly four times as likely to have complications (χ2  =  6.836, df  =  1, p  =  .009) if they had multiple chronic health conditions (three of the following: history of cerebral palsy, autism spectrum symptoms, aggressive behavior, respiratory disorder, and admission through the emergency department). Findings suggest preliminary criteria for assessing risk for complications among hospitalized people with ID and the need for attention to their specific needs when hospitalized.

Intellectual and developmental disabilities, 2015 · doi:10.1352/1934-9556-53.2.114