Service Delivery

Examining frequent emergency department use among children and adolescents with autism spectrum disorder.

Beverly et al. (2021) · Autism : the international journal of research and practice 2021
★ The Verdict

Autistic kids and teens use the ER more and with trickier health mixes—prep families before the next crisis hits.

✓ Read this if BCBAs serving autistic children or teens in any setting.
✗ Skip if Clinicians who work only with autistic adults over 25.

01Research in Context

01

What this study did

Goris et al. (2021) looked at every emergency room visit by kids and teens with autism in one state.

They compared how often these children used the ER and what other health issues they had.

02

What they found

Autistic youth went to the ER more than their non-autistic peers.

They also carried more extra health problems at the same time.

03

How this fits with other research

Iannuzzi et al. (2022) widened the lens to young adults and saw the same pattern. Autistic 18- to 25-year-olds were admitted to the hospital almost four times as often.

Amaral et al. (2019) focused only on psychiatric ER trips in privately insured teens. They found autistic teens had ten times more of these visits than typical peers, backing up the broader finding.

Totsika et al. (2023) added self-injury visits across all ages, showing autistic people land in the ER for this reason far more often.

Sturm et al. (2024) uncovered a twist: when autistic youth do reach the psychiatric ER, doctors miss trauma-related diagnoses 42 % more often. Higher use plus under-recognition equals double risk.

04

Why it matters

Your behavior plans should treat the ER as a likely event, not a rare crisis. Teach caregivers how to spot pain, seizures, or rising anxiety before it escalates. Build a short script they can hand to triage nurses that lists the child’s common triggers, best calming tools, and current meds. Role-play calling 911 or driving to the hospital. Add a goal for medical self-advocacy in the treatment plan. These steps cut wait times, reduce trauma, and keep procedures smooth when seconds count.

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02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder
Finding
not reported

03Original abstract

This study used data for 5.9 million individuals with 9.1 million emergency department visits from all hospitals in the state of New York to explore frequent emergency department use between children and adolescents with autism spectrum disorders and those without autism spectrum disorders. We found that children and adolescents with autism spectrum disorders had larger shares of comorbidities and diagnoses related to attention-deficit/hyperactivity disorder, intellectual disability, and epilepsy. Children and adolescents with autism spectrum disorders were also more likely to utilize emergency departments and to exhibit frequent use. These results emphasize the need for using family-centered care to improve the care experiences of children and youth with autism spectrum disorders and their families. In addition, the education of emergency department staff of processes and practices as it relates to delivery of care and the care experience.

Autism : the international journal of research and practice, 2021 · doi:10.1177/1362361321990925