Service Delivery

Evaluating Parental Autism Disclosure Strategies.

Austin et al. (2018) · Journal of autism and developmental disorders 2018
★ The Verdict

A pocket-sized autism card or bracelet measurably cuts public blame toward moms and kids in busy places.

✓ Read this if BCBAs coaching families who feel judged during community outings.
✗ Skip if Clinicians working only in clinic or home settings with no public stigma issues.

01Research in Context

01

What this study did

Researchers watched how strangers reacted to a mom and child with autism in a busy place. They tested three setups: mom handed a small card that said the child has autism, mom wore a bracelet with the same note, or mom used no tool at all.

The team then asked the strangers quick questions about blame and warmth. They compared scores across the three groups to see if the tiny card or bracelet helped.

02

What they found

Both the card and the bracelet lowered stranger stigma a little. Moms who used either tool were seen as more skilled and less at fault for any odd behavior.

The gain was modest but real. No tool led to the harshest ratings.

03

How this fits with other research

Libero et al. (2016) ran a similar mall test with only the card and got the same drop in blame. The new study adds the bracelet option and shows it works just as well.

Muskat et al. (2016) asked parents about speaking up in the ER. Parents there feared stigma if they said "autism" out loud. The card and bracelet give a quiet way to disclose without the child overhearing.

Shannon et al. (2008) found that simply telling adults the child has autism helped some, but not for every behavior. The card and bracelet give the same label in a physical form, so the benefit is steadier across situations.

04

Why it matters

You can give families a low-cost card or silicone bracelet today. Either tool softens first impressions from strangers at the park, store, or bus stop. Tell parents to keep a few cards in the wallet and one bracelet on the wrist. The tiny prompt buys a moment of understanding and cuts the dirty looks that wear families down.

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Print five business-card-sized disclosures and hand them to the parent at pickup.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
383
Population
autism spectrum disorder
Finding
positive
Magnitude
small

03Original abstract

The relative effects of different autism disclosure methods on the perceptions of a mother-child dyad were investigated. Using three conditions, disclosure card, disclosure bracelet, and no disclosure, U.S. community parents (N = 383) were asked 18 questions about their perceptions of the dyad. An ANOVA revealed significant protection from stigma for those in either disclosure condition compared to the no disclosure condition on two factors, Critical of the Mother/Child and Need to Protect Own Child, as well as a single item, Embarrassment for the Mother. These results reinforce findings that disclosure may effectively and efficiently reduce negative perceptions. The availability of multiple, effective methods of disclosure that reduce stigma allows parents to choose the method that best suits their individual preferences.

Journal of autism and developmental disorders, 2018 · doi:10.1007/s10803-017-3302-2