Environmental opportunities and supports for exercising self-determination in community-based residential settings.
Adults with ID in community homes still lack basic choices, but newer studies show you can fix this with small daily practice and supported decision-making tools.
01Research in Context
What this study did
Researchers asked adults with intellectual disability about choice in their group homes. They used surveys and interviews. The study took place in regular community houses, not institutions.
They wanted to know how much say people had over daily and big life decisions. Questions covered things like bedtime, food, roommates, and staff support.
What they found
Most adults had little or no choice. They could not pick where they lived, who helped them, or what they did each day. Even small choices like dinner time were rare.
The homes provided few chances to practice decision-making. Staff often made choices for the residents without asking.
How this fits with other research
Kleinert et al. (2007) found the same problem in Italy. Day-center users had more choices than institution residents. Together the studies show the setting matters.
Adams et al. (2024) offers a fix. Their focus groups showed adults with ID and families now use trusted supporters, apps, and early practice to make decisions. The 2024 paper builds on the 2001 warning by giving real tools.
Matson et al. (2013) adds a twist. Rural adults had better daytime opportunities than city adults, yet weaker friendships. More chances do not always equal better lives unless social skills are taught too.
Why it matters
If you run or consult in residential services, audit choice this week. Count how many times each client picks the menu, the movie, or the staff they want. Start with two extra choice points each morning. Over time these small moments build the self-determination muscles that later studies link to higher quality of life.
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02At a glance
03Original abstract
Information was collected on the environmental opportunities for exercising self-determination among 281 adults with mental retardation receiving community-based residential supports. The results indicated that: (1) the majority of participants had little or no opportunity to exercise self-determination over major life decisions (e.g., with whom and where to live, the recruitment and retention of care staff); (2) even in more mundane areas, such as where and when to eat, the majority of participants were not supported to exercise effective control; (3) variation in environmental opportunities to exercise self-determination was strongly related to a range of factors including participant ability, previous residential history, and structural and procedural aspects of the residential supports currently provided.
Research in developmental disabilities, 2001 · doi:10.1016/s0891-4222(01)00085-3