Service Delivery

Developing an Evaluation Framework for Parent Education and Training in Autism Spectrum Disorder: Results of a Multi-stakeholder Process.

Dawson-Squibb et al. (2019) · Journal of autism and developmental disorders 2019
★ The Verdict

Use the three-domain checklist to screen any autism parent-training programme before you buy it.

✓ Read this if BCBAs who choose or supervise parent-training programmes in clinics or schools.
✗ Skip if Practitioners who only run 1:1 direct therapy with no parent component.

01Research in Context

01

What this study did

A team brought together parents, clinicians, funders and self-advocates.

They met in four rounds to agree on what makes a good parent-education programme for autism.

The group wrote a three-part checklist you can use before you adopt any training package.

02

What they found

The checklist has three buckets: child and parent outcomes, training process, and real-world fit.

Each bucket lists must-have items such as ‘parent stress goes down’ and ‘staff can run it with current money and time’.

03

How this fits with other research

Ouyang et al. (2024) show that ImPACT, ESDM and PRT all give solid child gains when parents run them.

Their network meta-analysis is the kind of evidence the checklist tells you to look for first.

Gerow et al. (2018) found parent-implemented FCT cuts problem behaviour, but they warn most studies skip long-term fidelity checks.

The new checklist fixes that gap by forcing you to ask ‘can parents still do it correctly six months later?’

04

Why it matters

You no longer have to guess if a shiny new parent course will work in your clinic.

Run any programme through the three-domain checklist first.

If it fails on staff cost, parent stress or child outcome items, pick a different one and save everyone time.

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→ Action — try this Monday

Print the checklist and score your current parent-training programme; note any missing pieces to fix.

02At a glance

Intervention
not applicable
Design
qualitative
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Despite the need for parent education and training programmes in autism spectrum disorder (ASD), there is no generally-accepted evaluation framework to select programmes for different settings. Here we generated an evaluation framework using a multi-stakeholder, implementation science approach. Purposive sampling identified ASD experts, implementation/health systems experts, and parents/carers of individuals with ASD. A consensus-building stakeholder workshop with 14 stakeholders and thematic analysis was used to generate themes and components of the framework. Main themes included 'Outcomes' (parent, child, family and community), 'Processes and Procedures' (accessibility, acceptability, psychological process, and referral pathways) and 'Implementation Landscape' (sustainability, scalability, integration and coordination, and monitoring and evaluation). We propose that the evaluation framework and Evaluation Framework Checklist generated could guide clinicians, researchers and policy-makers.

Journal of autism and developmental disorders, 2019 · doi:10.1007/s10803-019-04176-w