Service Delivery

Decision-making of Chinese caregivers for adult out-of-home placement.

Marcus et al. (2006) · Journal of intellectual disability research : JIDR 2006
★ The Verdict

Hong Kong families apply for residential care when they feel unable to cope or when serious illness hits, not because the client's ID is severe.

✓ Read this if BCBAs who consult with adults with ID living at home and their aging parents.
✗ Skip if Clinicians serving only already-placed clients or those in school-based programs.

01Research in Context

01

What this study did

Chiu and colleagues asked 321 Hong Kong caregivers why they sought out-of-home placement for an adult with intellectual disability. They used a written survey that measured how capable the caregiver felt, the adult's behavior problems, and any health issues in the family.

The team then ran statistics to see which factors best predicted who had already applied for a residential spot.

02

What they found

Two things stood out. Caregivers who felt less competent at the daily tasks of caring were more likely to seek placement. The second big predictor was health: either the adult with ID or the aging parent had a serious medical problem.

Surprisingly, the adult's level of intellectual disability or behavior trouble did not drive the decision once these two factors were in the model.

03

How this fits with other research

Burke et al. (2018) extends this picture. They also surveyed parents of adults with ID and found that parents who joined more training activities were more likely to complete future planning. Both studies show parent confidence, not client severity, moves service use.

Chaplin et al. (2010) looks at the next step. After placement, adults who live independently or in supported homes show the highest rates of extra mental-health needs. Chiu tells us why families hand over care; Eddie warns us those same adults may need stronger clinical follow-up.

Mason (2007) mirrors the competence theme from the clinician side. UK therapists offered psychotherapy only when they felt skilled. Caregivers and clinicians alike act on self-rated ability, not just client labels.

04

Why it matters

If you want to keep families together longer, boost caregiver competence instead of only managing client behaviors. Offer hands-on training, respite, and health-care navigation. When you see a referral, check the caregiver's own health and confidence first. A few targeted supports may delay or prevent placement while still meeting the adult's needs.

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Add a quick caregiver-competence scale to your intake packet and schedule a respite plan before discussing placement.

02At a glance

Intervention
not applicable
Design
survey
Sample size
321
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: In the light of the existence of lengthy waiting lists for out-of-home placements, this study examines the factors affecting the decision to apply or not to apply for this facility in a city traditionally characterized by a cultural and policy emphasis on family responsibility and by relatively low levels of welfare commitment to residential services. METHOD: A sample of 321 people responsible for providing care for adults with moderate to severe intellectual disability (ID) from 22 service units of seven non-governmental organizations in Hong Kong was surveyed by means of a structured questionnaire. RESULTS: The non-application group reported better emotional ties with the people with ID and greater confidence in their caregiving skills, but also tended to be caring for more challenging people with poorer health and higher or more frequent levels of self-harm behaviour than the application group who exhibited higher levels of worry and fear. Discriminant analysis successfully predicted 80% of non-application cases, while logistic regression revealed that decline in perceived competence to care, absence of other health problems and at least one parent of the client having long-term illness were better predictors of the decision to apply than handicap-specific characteristics of the people with ID themselves. CONCLUSION: The implications of this finding are discussed, and consideration given to the possibility of developing policies designed to strengthen and treasure family values while not detracting from the importance of providing proper community support.

Journal of intellectual disability research : JIDR, 2006 · doi:10.1111/j.1365-2788.2006.00826.x