Community engagement and knowledge translation: progress and challenge in autism research.
Run short priority-setting workshops with families to pick targets that actually get used.
01Research in Context
What this study did
Elsabbagh et al. (2014) looked at how autism research reaches real-world services. They wrote a narrative review, not a new experiment. They focused on community engagement tools like priority-setting workshops.
The authors argued these tools can close the gap between lab findings and families who need help.
What they found
The review says structured engagement works. When researchers run workshops with parents, teachers, and clinicians, they learn what questions matter most.
Those questions then guide future studies, so results are more likely to be used.
How this fits with other research
Cohrs et al. (2017) extends this idea. They say bring stakeholders in even earlier, at the basic-science planning stage, not just before implementation.
Wong et al. (2022) show it in action. They asked families to nominate innovative autism programs across the US and found fifteen that already use co-design.
Bustos et al. (2021) tested engagement in everyday clinics. Community EIBI teams rated implementation strategies and gave feedback that shaped scale-up.
Wetherby et al. (2018) add proof of payoff. Online parent coaching based on community input improved toddler social communication within three months.
Why it matters
You can copy the workshop tactic now. Invite two parents, a teacher, and an OT to your next team meeting. Ask, 'What skill would help your child most this month?' Write the top three answers on the whiteboard. Shape your next goals around those priorities and track if caregivers use the strategies at home. One hour of structured listening can save months of low-value programming.
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02At a glance
03Original abstract
The last decade has seen significant growth in scientific understanding and public awareness of autism. There is still a long road ahead before this awareness can be matched with parallel improvements in evidence-based practice. The process of translating evidence into community care has been hampered by the seeming disconnect between the mainstream scientific research agenda and the immediate priorities of many communities. The need for community engagement in the process of translating knowledge into impact has been recognized. However, there remains little consensus or empirical data regarding the process of such engagement and how to measure its impact. We shed light on a number of engagement models and tools, previously advocated in health research, as they apply to autism research. Furthermore, we illustrate the utility of such tools in supporting identification of knowledge gaps and priorities, using two community-based case studies. The case studies illustrate that information generated from research is indeed relevant and critical for knowledge users in the community. Simple and systematic methods can support the translation and uptake of knowledge in diverse communities, therefore enhancing engagement with research and bridging research findings with immediate community needs.
Autism : the international journal of research and practice, 2014 · doi:10.1177/1362361314546561