Barriers and facilitators for obtaining support services among underserved families with an autistic child: A systematic qualitative review.
Underserved families hit the same three walls—access, choice, and stigma—no matter where they live.
01Research in Context
What this study did
Wallace-Watkin et al. (2023) read 18 earlier studies that asked underserved families, 'What makes it hard or easy to get autism help?'
The team pulled out every barrier and every helper families named. They grouped the answers into big themes.
What they found
Three themes showed up again and again: services are hard to reach, there are too few kinds of help, and stigma scares families away.
Families said long drives, long waits, and feeling judged block them most.
How this fits with other research
Rosales et al. (2021) and Kim et al. (2024) echo the same pain points: language gaps and English-only rules lock Latino and multilingual families out of ABA and school plans.
Straiton et al. (2021) looked only at Medicaid parent-training programs and found the same triple wall: family, provider, and agency hurdles. The new review shows these walls exist across all autism services, not just one program.
Anderson et al. (2018) warned that young-adult services are just as broken. Carla’s team widens the lens, proving the barrier pattern starts in childhood and never goes away.
Why it matters
If families can’t reach you, your superb behavior plans sit on the shelf. Check your own wait list, paperwork language, and office location against the three themes. Offer telehealth, translated materials, and community meet-ups to knock down the biggest walls first.
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02At a glance
03Original abstract
Families from underrepresented ethnic or racial groups and those with limited financial resources could experience more difficulty in accessing support services for their autistic child due to certain types of barriers. We searched academic journals, websites, and other sources for studies which looked at what barriers might be present for such families and what might help families access support services for their autistic child. The search found 18 studies. Results from each study were examined and coded into themes. Parents reported that accessibility, diversity of support services, and stigma influenced their experiences with support services. We discuss what these findings might mean for future research and for service delivery.
Autism : the international journal of research and practice, 2023 · doi:10.1177/13623613221123712