Balancing restriction and freedom in the care of people with intellectual disability.
Freedom without a support plan can harm adults with severe ID, so pair every move with matched services.
01Research in Context
What this study did
Macdonall (1998) tells the story of one man with severe intellectual disability. He moved from a large institution to a small community home. The team watched what happened next.
No new treatment was tested. The paper simply records the man's health and behavior before and after the move.
What they found
After the move, the man's health got worse. He lost weight, became withdrawn, and needed more medical care.
The authors say freedom without enough support can be harmful. Less restriction alone is not a cure-all.
How this fits with other research
Stancliffe et al. (2007) tracked hundreds of adults for ten years. They found that even strong policy cannot erase congregate care. Forty-three percent still lived in group settings at the end. The big picture matches the single case: moving out is only step one.
Mansell et al. (2010) flips the worry on its head. The IASSID position paper says community living is both safe and right if supports are strong. It answers the 1998 warning with a road map, not a retreat back to institutions.
Nøttestad et al. (2003) adds another layer. Drug use stayed the same after people moved. Challenging behavior, not setting, predicted prescriptions. Again, place alone does not fix care quality.
Why it matters
Use this case when planners want to close a facility overnight. Ask where the nursing hours, behavior plan, and medical follow-up will live after the doors shut. Pair the warning with the 2010 rights-based checklist to build a bridge, not a cliff.
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02At a glance
03Original abstract
The case of a 50-year-old man with severe intellectual disability is described. After 20 years of institutional care, the subject was moved to a newly opened community group home. His physical and mental health deteriorated at this location after unproven allegations of sexual abuse which had taken place whilst he had been living in the institution. Although the subject's health continued to deteriorate, there was resistance to his readmission to the same hospital for assessment. He had always needed to be cajoled into eating, but this approach had not been followed by the home which had contributed towards his weight loss. The situation the subject, the carers and the health personnel found themselves in illustrates how problematic it is to find the right balance between restrictive practices and respect for an individual's choice.
Journal of intellectual disability research : JIDR, 1998 · doi:10.1046/j.1365-2788.1998.00117.x