Service Delivery

Autism-specific primary care medical home intervention.

Golnik et al. (2012) · Journal of autism and developmental disorders 2012
★ The Verdict

An autism-tailored medical home triples the odds of smooth, parent-approved care—ask your clinic if they have one.

✓ Read this if BCBAs who help families navigate doctors, insurance, and school paperwork.
✗ Skip if BCBAs who only work in schools with on-site nurses handling all referrals.

01Research in Context

01

What this study did

Researchers tested an autism-specific medical home at a children’s hospital.

Families got one doctor who knew autism and a care coordinator.

The team tracked 6 months of visits and asked parents about care quality.

02

What they found

Families in the medical home were 3 times more likely to get coordinated care.

Parents felt more heard and rated the clinic higher.

Yet stress at home stayed the same—care was smoother, but life was still hard.

03

How this fits with other research

Kuhn et al. (2022) later moved the same idea into high schools.

Their Transitioning Together program worked best when schools already had strong family ties—echoing the medical home’s need for a ready team.

Hamama et al. (2021) showed telehealth can reach more families, but the medical home still wins for hands-on coordination.

Klein et al. (2024) found Black and multiracial families still hit walls with doctors. This looks like a clash, yet the medical-home study did not include many families of color, so the gap is real, not a contradiction.

04

Why it matters

Ask your families’ pediatric clinic if they offer an autism medical home. If not, push for a single point-of-contact nurse or social worker. Even without full medical-home status, one coordinator can triple the odds that referrals, scripts, and school letters actually happen on time.

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→ Action — try this Monday

Call each family’s pediatric office and ask, "Do you have an autism care coordinator?" If no, request one.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
203
Population
autism spectrum disorder
Finding
positive
Magnitude
medium

03Original abstract

Forty-six subjects received primary medical care within an autism-specific medical home intervention ( www.autismmedicalhome.com ) and 157 controls received standard primary medical care. Subjects and controls had autism spectrum disorder diagnoses. Thirty-four subjects (74%) and 62 controls (40%) completed pre and post surveys. Controlling for pre-survey medical home status, subjects had 250% greater odds of receipt of a medical home at the study end compared to controls (p = 0.021). Compared to controls, subjects receiving the intervention reported significantly more satisfaction (p = 0.0004), greater shared decision making (p = 0.0005) and fewer unmet needs (p = 0.067). However, subjects reported no change in family stress (p = 0.204).

Journal of autism and developmental disorders, 2012 · doi:10.1007/s10803-011-1351-5