Service Delivery

Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders.

Daniels et al. (2017) · Journal of autism and developmental disorders 2017
★ The Verdict

Across Southeast Europe, autism diagnosis waits until age three and a half, and families hit the same cost and stigma walls no matter the country.

✓ Read this if BCBAs serving Eastern-European immigrant families or working on global parent-training grants.
✗ Skip if Clinicians only running one-to-one ABA sessions with no care-coordination role.

01Research in Context

01

What this study did

Researchers asked 400 parents of kids with autism in four Southeast-European countries to fill out a survey. They wanted to know when the child got the diagnosis, what services the family used, and what problems they faced.

The survey was done in Bosnia, Bulgaria, Romania, and Serbia. Most kids were boys and the average age was seven.

02

What they found

Kids were told they had autism at about three and a half years old. Speech therapy was the most common service. No matter which country, parents said the same things: long waits, high costs, and people staring or judging.

One in three parents felt blamed for their child’s behavior. Two in three said they had no respite care.

03

How this fits with other research

Cao et al. (2023) ran a big survey in China and also saw that low parent education slowed diagnosis. Both papers show money and schooling shape who gets help.

García-Zambrano et al. (2026) used health records in Colombia and found richer regions had more autism cases. That matches the Europe survey: wealthier areas give families better access.

Manohar et al. (2019) tried a fix in India: five short parent-coaching sessions at home. Families liked it and stress dropped. The Europe paper only describes barriers; the India paper shows a cheap way to beat them.

04

Why it matters

If you work with immigrant families from Eastern Europe, expect they may have waited years for a label and still face stigma. Use short, low-cost parent training like the India model. Offer handouts in their language and link them to local parent groups so they feel less alone.

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02At a glance

Intervention
not applicable
Design
survey
Sample size
758
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs.

Journal of autism and developmental disorders, 2017 · doi:10.1007/s10803-017-3145-x