Service Delivery

A review of healthcare service and education provision of Autism Spectrum Condition in mainland China.

Sun et al. (2013) · Research in developmental disabilities 2013
★ The Verdict

Autism services in mainland China are scarce and families bear heavy out-of-pocket costs—plan extra support when collaborating with Chinese families or setting up programs there.

✓ Read this if BCBAs who work with Chinese families or consult on overseas autism projects.
✗ Skip if Practitioners serving only well-resourced, insurance-covered caseloads in North America or Europe.

01Research in Context

01

What this study did

Sun et al. (2013) searched Chinese and English databases for any paper about autism services in mainland China. They read every hit and grouped them by healthcare and education sectors.

The team wanted to see what autism help actually exists for families across the country.

02

What they found

The review found almost no studies and big service holes. Hospitals had long wait lists. Schools rarely offered autism classes. Families paid most costs themselves.

Rural areas were hit hardest. Cities had some options, but still too few.

03

How this fits with other research

Feng et al. (2025) later interviewed Chinese parents and gave these gaps a voice. Parents told the same story: little help, high bills, and feeling alone. The 2013 map and the 2025 stories line up perfectly.

Xie et al. (2023) built a tool to track family outcomes in China. They proved the survey works and showed Chinese caregivers score lower than Western peers. The tool now lets us measure the very shortages Xiang first described.

Sakhardande et al. (2026) ran a cost survey in urban India and found the same pain: over 70% of families spend more than one-tenth of monthly income on autism care. The money burden is not just a China problem; it spans South Asia.

04

Why it matters

If you coach families from mainland China, expect thin local backup and high out-of-pocket costs. Build low-budget parent training and link them to charity funds. When you design programs for Chinese partners, add extra budget lines for family travel and lost wages. The 2013 picture still holds: services are scarce, so your plan must fill the gaps.

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Add a cost-check question to your intake form: 'What percentage of your income goes to autism care?' Use the answer to tailor low-cost home programs.

02At a glance

Intervention
not applicable
Design
scoping review
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Little is known about the current situation regarding Autism Spectrum Conditions in mainland China. Electronic databases and bibliographies were searched to identify literature on service provision for ASC in both English and Chinese databases. 14 studies and 6 reports were reviewed. The findings of identified papers on service provision were summarized according to four settings for ASC including healthcare, mainstream education, private special education, and state-run special education. The literature on the situation of the healthcare system and educational services for children with ASC in China was profoundly limited. There were great financial problems faced by the parents of autistic children which were partly due to the under-developed healthcare and educational system for ASC.

Research in developmental disabilities, 2013 · doi:10.1016/j.ridd.2012.08.013