Practitioner Development

The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done.

Nordahl-Hansen et al. (2018) · Journal of autism and developmental disorders 2018
★ The Verdict

The autism caregiver research field is active but needs stronger parent-training protocols and stress-reduction interventions.

✓ Read this if BCBAs who write parent-training goals or run caregiver support groups.
✗ Skip if Practitioners looking only for child-focused skill-acquisition data.

01Research in Context

01

What this study did

Nordahl-Hansen et al. (2018) read every paper they could find on parents of kids with autism.

They did not run new tests. They simply mapped what the field has studied so far.

They saw lots of work on stress, but few strong parent-training plans.

02

What they found

The field is busy, but most studies just describe caregiver stress.

Very few give clear steps to lower that stress or teach new parenting skills.

The authors say we need better, tested parent-training programs.

03

How this fits with other research

Fahmie et al. (2013) pooled data from many studies and showed parents of kids with autism feel far more stress than parents of typical kids or kids with other disabilities.

Shepherd et al. (2018) asked 182 parents what stressed them most. Advocacy tasks, not daily care, topped the list.

Burrows et al. (2018) found that family resources, social support, and parenting confidence can buffer that same stress.

Together these papers agree: stress is high, we know what fuels it, and we know what can soften it. The gap is turning that knowledge into clear training manuals.

04

Why it matters

You now know the field has done enough stress surveys. The next step is to build and test parent-training packages that teach coping, advocacy, and behavior skills. Start small: pick one buffer factor—like social support—and add a brief parent group to your next treatment plan. Measure parent stress before and after. You will help close the gap Anders et al. pointed out.

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Add a five-minute parent social-support check-in to your next session and track stress with a simple 1-10 scale.

02At a glance

Intervention
not applicable
Design
narrative review
Population
autism spectrum disorder
Finding
not reported

03Original abstract

There is a long history of research on parents and caregivers of individuals within autism. Parents and other primary caregivers typically play the most important part in the lives of persons with ASD although the need for support as the child becomes of age varies widely. This special issue includes 30 articles on central areas related to parenting and caregiving for people with ASD. Some of the key themes include intervention and training, mental health issues related to parent and family stress, measurement and assessment, and parent-child transactional processes. Other articles in this issue consider different but equally important topics such as sibling as potential future caregivers and parent support of preschool peer relationships.

Journal of autism and developmental disorders, 2018 · doi:10.1007/s10803-018-3526-9