Practitioner Development

Normal for an Asperger: notions of the meanings of diagnoses among adults with Asperger syndrome.

Bertilsdotter Rosqvist (2012) · Intellectual and developmental disabilities 2012
★ The Verdict

Adults with Asperger syndrome often wear the label as a badge of cultural pride—treat it as an asset, not a flaw.

✓ Read this if BCBAs working with verbal adults on the spectrum in clinic, college, or job-support settings.
✗ Skip if Clinicians serving only non-speaking children or those focused solely on early intensive ABA.

01Research in Context

01

What this study did

Bertilsdotter Rosqvist (2012) talked with 14 Swedish adults who have Asperger syndrome. She asked how they feel about the label and what it means to them.

The chats were open-ended. People told stories about work, friends, and daily life. The author then looked for common themes in the words they used.

02

What they found

The adults did not see Asperger as a problem. They said it is simply 'normal for an Asperger.' The label became a proud identity, not a deficit.

They swapped medical talk for cultural talk. One man said, 'We are a tribe.' This self-view helped them ask for fair support at work and school.

03

How this fits with other research

Havercamp (2017) built on this idea. The team made the 22-item Autism Spectrum Identity Scale. It turns the proud stories Hanna heard into numbers you can track.

Danforth et al. (2010) shows the flip side. Fifty years ago professionals called the same group 'uneducable.' Kirk’s old speeches pushed hurtful labels. Hanna’s adults are taking the label back.

Reid (2020) warns us to watch our own field. PBS and ABA still fight over words and roles. Hanna’s work says: listen first, then speak—clients already have their own strong words.

04

Why it matters

When an adult client says, 'I’m an Aspie and proud,' echo the pride. Note it in the file and use it in goal setting. Identity strength can boost cooperation and cut stigma during social-skills training or job coaching.

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Add one question to your intake: 'What does being on the spectrum mean to you?' Write the exact words in the plan and build goals that fit that self-story.

02At a glance

Intervention
not applicable
Design
qualitative
Sample size
12
Population
autism spectrum disorder
Finding
not reported

03Original abstract

This study explores the production of a counterhegemonic discourse of "autistic normalcy" among adults with high-functioning autism by analyzing notions of diagnosis. The discourse analyses are based on material from ethnographic fieldwork in a Swedish educational setting. Study participants were 3 male and 9 female adults who had been diagnosed with Asperger syndrome. The notion of diagnosis comprises issues concerning coming out and knowledge production. The findings capture an ongoing reformulation process among people involved in the autistic self-advocacy movement when it comes to the meanings of Asperger syndrome and what it means to be a person with Asperger syndrome.

Intellectual and developmental disabilities, 2012 · doi:10.1352/1934-9556-50.2.120