Practitioner Development

Leadership development of individuals with developmental disabilities in the self-advocacy movement.

Caldwell (2010) · Journal of intellectual disability research : JIDR 2010
★ The Verdict

Self-advocates become leaders by resisting oppression, getting support, learning skills, and taking on bigger roles.

✓ Read this if BCBAs working with teens or adults with developmental disabilities in day or residential programs
✗ Skip if BCBAs serving only young children or clients without developmental disabilities

01Research in Context

01

What this study did

The author talked to adults with developmental disabilities who lead self-advocacy groups.

They asked how these leaders grew their skills and confidence over time.

The study used open interviews and looked for common themes in the stories.

02

What they found

Four clear themes showed up in every story.

Leaders first had to fight against disability oppression in their lives.

They needed supportive people, chances to learn skills, and bigger leadership roles.

03

How this fits with other research

Hutzler et al. (2010) found that peer modeling boosts self-efficacy in physical activity. This matches the peer support theme in van der Molen (2010).

Giesbers et al. (2020) showed that parents gain confidence when they understand the 'why' behind strategies. The same idea applies to self-advocates learning leadership skills.

Lin et al. (2010) and Lin et al. (2009) report rising abuse rates against people with disabilities. van der Molen (2010) offers a hopeful counter-story: the same population can build power through self-advocacy leadership.

04

Why it matters

You can help clients see themselves as future leaders. Start by inviting them to speak about their own lives in team meetings. Give them real choices in goal setting. Pair them with peer mentors who already self-advocate. These small steps build the four themes the study found: fighting stigma, finding supports, learning skills, and taking on bigger roles.

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Ask your client to co-lead part of their next team meeting

02At a glance

Intervention
not applicable
Design
qualitative
Sample size
13
Population
developmental delay
Finding
not reported

03Original abstract

BACKGROUND: Exploring the life stories of leaders in the self-advocacy movement can expand our knowledge about leadership development of individuals with developmental disabilities. A better understanding of this process may assist with supporting the movement and leadership development of youth with disabilities. METHODS: In-depth qualitative interviews were conducted with 13 leaders in the self-advocacy movement within the USA in order to explore their life stories. Purposeful sampling contributed to a diverse sample of leaders. A grounded theory approach led to the identification of major themes and factors associated with their leadership development. FINDINGS: Four major themes emerged: (1) disability oppression and resistance; (2) environmental supports and relationships; (3) leadership skills; and (4) advanced leadership opportunities. Findings have conceptual and practical relevance for future interventions and research.

Journal of intellectual disability research : JIDR, 2010 · doi:10.1111/j.1365-2788.2010.01326.x