Practitioner Development

A Social-Ecological Approach to Inclusive Research With People With Intellectual Disability.

Kim et al. (2025) · Intellectual and developmental disabilities 2025
★ The Verdict

Use a social-ecological checklist to make your next study truly co-run by people with ID.

✓ Read this if BCBAs who sit on university or clinic research boards
✗ Skip if Clinicians only doing one-to-one therapy with no research role

01Research in Context

01

What this study did

Kim et al. (2025) wrote a how-to guide for teams who want people with intellectual disability on the research crew.

They used a social-ecological model. That means they looked at the person, the team, the building, and the wider rules.

The paper lists supports at each level so scholars with ID can help plan, run, and share real studies.

02

What they found

The guide shows strengths first. If you give the right tools, people with ID can be full partners, not just subjects.

Supports include plain-language forms, buddy systems, quiet rooms, and flexible deadlines.

03

How this fits with other research

Shogren (2023) extends this idea by calling participation a human right, not a favor. The 2025 guide gives the nuts-and-bolts that make that right real.

Tavassoli et al. (2012) first said a rights lens beats old medical paternalism. Geonhwa et al. move from ethics talk to a ready checklist.

Hogg (1997) used the same ecological model for ageing adults with ID. The new paper flips it: instead of fixing clients, it fixes the research world.

04

Why it matters

You can copy the checklist tomorrow. Swap jargon forms for easy-read versions, add a quiet break space, and pair each scholar with a mentor. These small moves turn token inclusion into shared power and richer data.

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Download the plain-language consent template from the paper and pilot it with one client.

02At a glance

Intervention
not applicable
Design
theoretical
Population
intellectual disability
Finding
not reported

03Original abstract

Inclusive research reflects a societal shift in how disability is understood from deficit-based to a social-ecological model. The purpose of this article is to delineate the barriers to and supports for inclusive research and the outcomes that are achieved through inclusive research using a social-ecological approach. In the social-ecological framing of inclusive research, a strength-based understanding of disability and the barriers to inclusive research were emphasized. The supports model was employed to describe the role of individual and environmental supports for the inclusion of researchers with intellectual disability. Personal, research, and social outcomes of inclusive research, mediated by supports, were explained. These outcomes interactively make changes in the context where inclusive research is conducted, further enhancing outcomes.

Intellectual and developmental disabilities, 2025 · doi:10.1352/1934-9556-63.6.472