Quality of life of family caregivers of children with autism: The mother's perspective.
For moms of kids with autism, feeling good boosts health, but chronic illness and heavy religious activity can drag quality of life down.
01Research in Context
What this study did
Researchers asked 104 Taiwanese moms of children with autism to fill out the WHOQOL-BREF.
The survey looked at what helps or hurts a mother’s physical and mental quality of life.
Moms answered questions about their mood, health problems, and how often they join religious events.
What they found
Mothers who felt good about life scored higher on physical and mental health scales.
Chronic illness dragged scores down.
Surprisingly, stronger religious activity also linked to lower quality-of-life scores.
How this fits with other research
Reed et al. (2016) extends these results by showing everyday stress, not just parenting stress, hurts mom’s health.
Joosten et al. (2009) is a conceptual twin done in the U.S. the same year. They also found religious activity predicted worse outcomes, while private spirituality helped — the same split Bih-Ching saw.
Benson (2018) follows moms for 12 years and confirms that stress and low mood slowly wear down health, turning the 2009 snapshot into a long-term warning.
Naheed et al. (2020) moves the question to Bangladesh and adds a depression screen; nearly half the moms met criteria for major depression, showing the problem is global.
Why it matters
You now have a checklist: ask moms how they feel, screen for chronic illness, and notice if heavy religious activity masks fatigue or low mood. A quick WHOQOL-BREF at intake gives you numbers to track. Pair it with stress and depression screens like Phil et al. and Aliya et al. do. Treat maternal mood early; the whole family functions better when mom’s health is protected.
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02At a glance
03Original abstract
The purpose of this study was to explore the relationship between the quality of life (QOL) and feeling of mothers of a child with autism. The QOL instrument was also used. A total of 104 participants completed all questionnaires, which included the Taiwan version of the WHOQOL-BREF. A final robust parsimonious structural model showed a positive correlation between the four domains of QOL. Mother's feeling was positively related to the physical and psychological domains. History of chronic disease was negatively related to mother's feeling and the physical domain. Religion was negatively correlated with the psychological and environmental domains. The study provided evidence that the WHOQOL-BREF is an adequate and appropriate instrument in the assessment of caregivers of children with autism in Taiwan. Mother's feeling, history of chronic disease and religion were related to QOL in these mothers of children with autism.
Autism : the international journal of research and practice, 2009 · doi:10.1177/1362361307098517