Autism & Developmental

Psychosocial functioning in a group of Swedish adults with Asperger syndrome or high-functioning autism.

Engström et al. (2003) · Autism : the international journal of research and practice 2003
★ The Verdict

Independence is not enough—Swedish adults with AS/HFA still need jobs, friends, and mood support.

✓ Read this if BCBAs writing transition or adult day-hab plans.
✗ Skip if Clinicians who only work with early-intervention cases.

01Research in Context

01

What this study did

Tsao et al. (2003) followed a small group of Swedish adults with Asperger syndrome or high-functioning autism. They wanted to see how these adults were doing in everyday life. The team looked at jobs, relationships, housing, and support needs.

02

What they found

Most adults lived on their own but could not find work. Few had partners. Many needed help from both public and private services. The picture was independence without full participation.

03

How this fits with other research

Lundqvist (2013) studied every adult with intellectual disability in the same Swedish county. He found that 62 % also had behavior problems. The 2003 group looked calmer, but both studies show adults stuck outside real employment.

Schiltz et al. (2023) tracked anxiety and depression over time in autistic adults. She showed these feelings feed each other year after year. The 2003 snapshot of poor outcomes now has a clear mental-health engine driving it.

Austin et al. (2015) counted social ties. Adults with ASD or ID had smaller, looser family networks than neighbors without disabilities. The 2003 report of few partners gains a network map: thin support lines in every direction.

04

Why it matters

If you serve adults with ASD, do not stop at daily-living goals. Add long-term career coaching and mental-health screens. Build social capital beyond family. Plan for decades, not months.

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02At a glance

Intervention
not applicable
Design
case series
Population
autism spectrum disorder
Finding
not reported

03Original abstract

This study reports on psychosocial functioning in Swedish adults with Asperger syndrome (AS) or high-functioning autism (HFA). A systematically selected sample of patients and relatives was interviewed concerning their psychosocial situation. The majority was living independently. All persons but one were unemployed. None was married and none had children. Only a few had some kind of partner. Most persons needed a high level of public and/or private support. The overall adjustment was rated good in 12 percent, fair in 75 percent and poor in 12 percent. Adult persons with AS/HFA have extensive need for support from their families and/or society. This information is important in order to provide adequate interventions that are in accordance with the expressed needs of the individuals themselves.

Autism : the international journal of research and practice, 2003 · doi:10.1177/1362361303007001008