Participation Difficulties in Autism Spectrum Disorders and Intellectual Disabilities: Findings from the 2011 Survey of Pathway to Diagnosis and Services.
Friendship is the hardest participation area for kids with ASD or ID, so make social skills your first treatment target.
01Research in Context
What this study did
Hamama et al. (2021) looked at a national survey of school-age children with autism or intellectual disability. They asked parents which daily life areas were hardest for their kids to join in.
The team sorted answers into six areas: friendship, school, home, leisure, sports, and faith. They compared kids with autism only, ID only, and both together.
What they found
Friendship came out on top as the toughest area for every group. Kids with both autism and ID had the most trouble across all six areas.
School and leisure were also hard, but friendship stood out as the biggest gap.
How this fits with other research
Libero et al. (2016) warned that the ID field still lacks a shared definition of participation. L et al. answer that call by giving a clear six-area checklist you can track.
Lifshitz et al. (2014) saw the same narrow social lives in kids with physical disabilities. The new data show the pattern is just as strong for autism and ID.
Kimhi et al. (2012) found HFASD preschoolers play better with friends than strangers. L et al. extend that idea upward: if friendship is the weakest link, teaching peer-entry skills should start early and keep going.
Why it matters
You can now tell parents, "Friendship is the number-one gap nationwide, so we will write social goals first." Use lunch bunches, peer models, and community clubs. Add friendship metrics to your progress notes instead of only tracking language or academics.
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02At a glance
03Original abstract
Greater understanding can increase our knowledge and intervention effectiveness for activity participation problems of children with disabilities. We examined participation difficulties of children with autism spectrum disorders (ASD) and intellectual disabilities (ID) in the 2011 Survey of Pathway to Diagnosis and Services. We utilized propensity score matching with inverse probability of treatment weight with questions from parents of 1783 children aged 6-17 years. Friendship was the most difficult area for all children. Children with both ASD and ID experienced the most difficulty in all areas, followed by ASD alone. Reported levels of home life, friendships, classroom and leisure difficulties were moderately correlated for all children. Children who were previously diagnosed, but have no current diagnosis experienced substantial difficulties.
Journal of autism and developmental disorders, 2021 · doi:10.1016/j.rasd.2008.09.002