Autism & Developmental

Into the unknown: aging with autism spectrum disorders.

Perkins et al. (2012) · American journal on intellectual and developmental disabilities 2012
★ The Verdict

Research on adults over 50 with ASD is scarce—be ready to swap generic gerontology tools for autism-informed, individualized plans.

✓ Read this if BCBAs who write support plans for mid-life or older autistic adults in day programs, residential, or clinic settings.
✗ Skip if Practitioners who work only with children under 18.

01Research in Context

01

What this study did

Storch et al. (2012) read every paper they could find on adults with autism who are over 50. They wrote a story-style review. They asked: what happens when these adults grow old?

02

What they found

The team saw big gaps. Almost no studies looked at people past mid-life. Still, the papers said life can get better with the right help. Medical, social, and housing supports must fit each person because science gives few road maps.

03

How this fits with other research

Later work fills the gaps A et al. pointed out. Bao et al. (2017) tracked 74 adults for 25 years and showed that mood and behavior problems often ease with age while core autism signs stay steady. That matches the hopeful note in Storch et al. (2012).

Hwang et al. (2020) counted how many autistic adults meet standard "aging well" rules. Only one in thirty did, so the old checklist fails this group. The finding supports A et al.’s call for new, autism-friendly criteria.

Aitken et al. (2026) talked with 17 autistic adults aged 46-72. The adults asked for services that understand autism and trauma. Their voices give real-life detail to the supports A et al. could only imagine.

04

Why it matters

You may soon meet clients who are 50, 60, or 70 with autism. Science will not tell you exactly what to do. Screen for epilepsy, sleep, and heart issues as Parsons et al. (2019) suggest. Add peer-run support because Rebecca et al. show it works. Drop the generic "aging well" score sheet and write goals that fit the person’s own view of a good life.

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02At a glance

Intervention
not applicable
Design
narrative review
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Research investigation of older adults with autism spectrum disorders (ASD) noticeably lags behind studies of children and younger adults with ASD. This article reviews the current literature regarding a range of quality of life outcomes of aging adults with ASD. Studies that have addressed life expectancy, comorbid physical and mental health issues, ASD symptomatology, and social, residential, and vocational outcomes are reviewed. Research challenges in identifying older cohorts of adults with ASD are also discussed, and notable areas of concern are highlighted. Overall, aging with ASD does present challenges, but there is also evidence that positive outcomes are attainable. The article concludes with brief recommendations on how to optimize the aging process for individuals with ASD.

American journal on intellectual and developmental disabilities, 2012 · doi:10.1352/1944-7558-117.6.478