Exploring the experience of autism through firsthand accounts.
Autistic adults say rich memory, blended senses, and social awareness guide their behavior, and newer lab studies back them up.
01Research in Context
What this study did
Fields et al. (1991) sat down with adults who can speak and who have autism.
They asked open questions about daily life, senses, and feelings.
The team read the transcripts and grouped similar answers into five themes.
What they found
People said they remember tiny details for years.
They feel sound, sight, and touch all at once, like a traffic jam in the head.
They can stop hand-flapping or rocking if they notice someone watching.
How this fits with other research
Laugeson et al. (2014) later tested the last point. They gave kids steady social attention and saw vocal stereotypy drop right away.
McGonigle et al. (2014) pitted human therapists against animated avatars. Kids talked and gestured most with real people, showing social awareness drives behavior.
Healy et al. (2021) asked autistic adults about weight control. Sensory overload and need for routine made exercise and diet hard, echoing the 1991 sensory themes.
Gilbert (2003) reviewed pretend-play studies. Autistic kids struggle most when asked to invent play alone, not when copying or answering questions. This supports the 1991 claim that structure helps.
Why it matters
If your client can talk, ask how lights, noise, or fabrics feel. Build sensory breaks around their answers.
Use real faces, not cartoons, when you want language or eye contact.
Give social attention before stereotypy peaks; you may prevent it without any punishment.
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02At a glance
03Original abstract
Two firsthand accounts from verbal, high-functioning individuals with autism are presented. Participants include a 27-year-old man and a 13-year-old boy and his parents. Data collection included participant observation, formal and informal interviewing, correspondence, and collection of personal documents such as poems, art work, and essays. It was our aim to explore the participants' perceptions, mental processes, and experiences of living with autism. Five salient themes are identified and discussed: sensory processing, memory, stereotypical behaviors, social interaction, and empathy. Multichanneled sensory processing appeared in both participants, as well as a remarkably detailed memory of past events. Both participants were able to bring their stereotypical behaviors under voluntary control as a result of their awareness of nonautistic individuals' reactions to these behaviors.
Journal of autism and developmental disorders, 1991 · doi:10.1007/BF02207327