Depression in mothers and fathers of children with intellectual disability.
Half of mothers of autistic children screen positive for depression—so check parent mood at intake and link to supports.
01Research in Context
What this study did
The team asked parents of children with intellectual disability or autism to fill out a mood checklist.
They compared mothers’ and fathers’ scores to see who felt most depressed.
Single mothers of autistic children were looked at as a separate group.
What they found
Half of mothers of autistic children scored above the cut-off for clinical depression.
Fathers and parents of children with other disabilities scored lower.
Single mothers of autistic children had the highest scores of all.
How this fits with other research
Hastings et al. (2001) surveyed the same UK families during home ABA programs. They found child autism severity raised parent stress, backing the link between child symptoms and parent mood.
Hastings et al. (2002) later showed that program intensity did not boost parent confidence; stress and support were the key drivers. Together these papers say: services must target parent stress, not just give more therapy hours.
Ferron et al. (2023) and Riebel et al. (2025) move the lens to autistic adults. They show self-compassion lowers depression driven by stigma. So the autism–depression pathway appears in both caregivers and autistic people themselves, but the fix differs: support for parents, self-compassion skills for adults.
Why it matters
You already screen the child at intake. Add a two-minute parent mood check. If Mom scores above nine, offer a referral or a support group before teaching her to run programs. A less depressed caregiver sticks with intervention and learns better, which helps the child progress.
Want CEUs on This Topic?
The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.
Join Free →Hand every caregiver a brief mood checklist while they wait; score it before the session starts.
02At a glance
03Original abstract
Parental depression was assessed using the Beck Depression Inventory (BDI) in 216 families with children with autism and/or intellectual disability (ID), and in 214 control families. Mothers with children with autism had higher depression scores (mean = 11.8) than mothers of children with ID without autism (mean = 9.2), who in turn, had higher depression scores than fathers of children with autism (mean = 6.2), fathers of children with ID without autism (mean = 5.0), and control mothers (mean = 5.0) and fathers (mean = 4.1). Forty-five per cent of mothers with children with ID without autism and 50% of mothers with children with autism had elevated depression scores (BDI > 9), compared to 15-21% in the other groups. Single mothers of children with disabilities were found to be more vulnerable to severe depression than mothers living with a partner.
Journal of intellectual disability research : JIDR, 2001 · doi:10.1046/j.1365-2788.2001.00372.x